All 101 videos currently accessible on or from this site are listed below – the list is pre-sorted in various ways as indicated on the tab headings. Any column can also be sorted (A-Z) by clicking on its header row; clicking a second time reverses the order (Z-A). To easily find a specific video, enter your search term in the box (you do not need to hit the enter key) and the list will be filtered to display only your selection. Clear the search box, or refresh the page, to view the whole list again. To go to any video, click its related “View Video” link.

Polio Australia monitors the quality of the information available in the videos but does not make any representation or warranty about the knowledge or expertise of those presenting.

Category Presenter Presentation Length Series Year Publisher
Category
Series
Year
Publisher
Presenter
Presentation Title
Length (h:m:s)
Video Link
Advocacy
Education
2017
Polio Australia
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Polio Australia in Profile
00:05:07
www.poliohealth.org.au/polio-australia-profile-video/
Advocacy
St Louis Conference
2014
Post-Polio Health International
William G Stothers
Self-Advocacy and Community Advocacy
00:19:19
www.poliohealth.org.au/william-stothers/
Ageing
Amsterdam Conference
2014
European Polio Union
Dr Jan Lexell
Aging and Muscle Function Including Sarcopenia
00:19:58
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
Ageing
St Louis Conference
2014
Post-Polio Health International
Audrey J King
Growing Older with Grace
00:15:08
www.poliohealth.org.au/audrey-king/
Anaesthesia
Amsterdam Conference
2014
European Polio Union
Dr Lise Kay
Anesthesiology: A Risk in PPS?
00:25:44
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
Anaesthesia
Copenhagen Conference
2011
European Polio Union
Dr Selma Calmes
Anesthesia for Post-Polio Patients
00:25:26
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
Anaesthesia
St Louis Conference
2014
Post-Polio Health International
Dr Selma Calmes
Polio and Anesthesia
00:29:46
www.poliohealth.org.au/selma-calmes/
Cardiorespiratory
Amsterdam Conference
2014
European Polio Union
Eric Voorn
Cardiorespiratory Exercise
00:12:35
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
Clinical Practice
Education
2017
Polio Australia
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice Workshops
00:02:59
www.poliohealth.org.au/clinical-practice-workshops-video/
Clinical Structures
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
00:21:02
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
Comorbidity
Copenhagen Conference
2011
European Polio Union
Dr Irene Tersteeg
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
00:16:10
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
Conference Summary
Amsterdam Conference
2014
European Polio Union
Kristian Borg, John McFarlane
Summary of Main Conference Results
00:07:56
www.informed-scientist.org/presentation/summary-of-main-conference-results
Conference Summary
Sydney Conference
2016
Polio Australia
Mary-ann Liethof
Post-Polio Conference - Sydney 2016
00:01:56
www.poliohealth.org.au/2016-conference-overview-video/
Diagnosis
Polio Today
2009
Salk Institute
Dr Susan Perlman
Can Blood Tests Help Diagnose PPS?
00:01:12
www.poliohealth.org.au/dr-susan-perlman-video-09/
Diagnosis
Polio Today
2009
Salk Institute
Dr Susan Perlman
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
00:01:49
www.poliohealth.org.au/dr-susan-perlman-video-10/
Diagnosis
Polio Today
2009
Salk Institute
Dr Susan Perlman
Which Tests are Performed to Diagnose PPS?
00:04:02
www.poliohealth.org.au/dr-susan-perlman-video-08/
Diagnosis
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
00:06:01
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
Evaluation
St Louis Conference
2014
Post-Polio Health International
Dr Frederick M Maynard
Components of a Post-Polio Evaluation
00:35:59
www.poliohealth.org.au/fred-maynard/
Exercise
Amsterdam Conference
2014
European Polio Union
Dr Deirdre Murray
Exercise – From Theory to Practice
00:10:51
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
Exercise
Amsterdam Conference
2014
European Polio Union
Dr Deirdre Murray
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
00:13:14
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
Exercise
Amsterdam Conference
2014
European Polio Union
Fieke Koopman
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
00:11:33
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
Exercise
Polio Today
2009
Salk Institute
Dr Susan Perlman
What Type of Exercise is Beneficial to PPS Patients?
00:01:59
www.poliohealth.org.au/dr-susan-perlman-video-13/
Falls
Copenhagen Conference
2011
European Polio Union
Dr Alice Bickerstaffe
Falls in Polio Survivors
00:19:59
www.informed-scientist.org/presentation/falls-among-polio-survivors
Falls
Polio Today
2009
Salk Institute
Dr Susan Perlman
Can the Onset of PPS be Caused by a Fall or Trauma?
00:02:18
www.poliohealth.org.au/dr-susan-perlman-video-05/
Late Effects of Polio / Post-Polio Syndrome
Education
2017
Polio Australia
Dr John Tierney, Gillian Thomas, Susan Ellis
Polio Survivors Talk About the Late Effects of Polio
00:02:22
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
Late Effects of Polio / Post-Polio Syndrome
Interviews
2012
NZ TV Central
Gnanaletchumy M Jegasothy (Jega)
An Interview with Jega by NZ TV Central News
00:06:49
www.poliohealth.org.au/gm-jegasothy/
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
Dr Susan Perlman
What is the Biological Cause of PPS?
00:03:22
www.poliohealth.org.au/dr-susan-perlman-video-03/
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
Dr Susan Perlman
When Does PPS Manifest Itself? Why?
00:03:28
www.poliohealth.org.au/dr-susan-perlman-video-02/
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
Dr Susan Perlman
Who is Your Typical PPS Patient?
00:01:32
www.poliohealth.org.au/dr-susan-perlman-video-01/
Late Effects of Polio / Post-Polio Syndrome
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
The Big Picture
00:35:54
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
Dr Richard L Bruno
Dr Rchard Bruno's 10 Commandments
00:06:59
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
Dr Stephen de Graaff
Dr Stephen de Graaff Talks About Post-Polio Syndrome
00:14:25
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Introduction
00:06:10
www.poliohealth.org.au/pps-the-australian-experience-introduction/
Late Effects of Polio / Post-Polio Syndrome
Support Group Presentations
2012
Polio NSW
Dr Peter Nolan
PPS: An Orphan Disease
01:06:10
www.poliohealth.org.au/dr-peter-nolan/
Management
Education
2017
Polio Australia
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Best Practice Management of the Late Effects of Polio
00:05:10
www.poliohealth.org.au/best-practice-management-video/
Management
Polio Today
2009
Salk Institute
Dr Susan Perlman
What are the Recommendations to Effectively Manage PPS?
00:02:37
www.poliohealth.org.au/dr-susan-perlman-video-12/
Management
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Managing Symptoms
00:56:12
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
Management
St Louis Conference
2014
Post-Polio Health International
Dr Carol Vandenakker-Albanese
Components of Comprehensive Post-Polio Management
00:28:13
www.poliohealth.org.au/carol-vandenakker-albanese/
Medical Practitioners / Therapists
Polio Today
2009
Salk Institute
Dr Susan Perlman
What Type of Physician Can Best Diagnose PPS?
00:01:28
www.poliohealth.org.au/dr-susan-perlman-video-07/
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Therapists
00:07:47
www.poliohealth.org.au/pps-shades-of-grey-therapists/
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
Mary-ann Liethof
About the Participants
00:05:23
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
Medical Practitioners / Therapists
PPS: The Australian Experience
2005
Polio Network Victoria
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners
00:04:13
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
Medication
Amsterdam Conference
2014
European Polio Union
Dr Lise Kay
Medication for Co-Morbidity
00:13:59
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
Medication
Polio Today
2009
Salk Institute
Dr Susan Perlman
Can PPS be Treated with Medication?
00:02:26
www.poliohealth.org.au/dr-susan-perlman-video-14/
Motor Neuron
Polio Today
2009
Salk Institute
Dr Susan Perlman
Can Lifestyle Exacerbate Motor Neuron Loss?
00:01:37
www.poliohealth.org.au/dr-susan-perlman-video-06/
Non-Clinical Services
PPS: Shades of Grey
2008
Polio Network Victoria
Joan L Headley, Richard Daggett
Information and Non-Clinical Services
00:08:48
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
Occupational Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
00:04:16
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
Orthotics
Copenhagen Conference
2011
European Polio Union
Dr Barbara Bocker
Latest News in Orthotics for Polio Survivors
00:19:37
www.informed-scientist.org/presentation/orthosis-management
Orthotics
Copenhagen Conference
2011
European Polio Union
Kees Noppe
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
00:40:53
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
Orthotics
PPS: The Australian Experience
2005
Polio Network Victoria
Darren Pereira with Karim Degal
Orthotics
00:03:24
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
Orthotics
Sydney Conference
2016
Post-Polio Health International
Darren Pereira
Orthotic Needs of Younger Polio Survivors
00:23:37
www.poliohealth.org.au/darren-pereira-orthotic-needs/
Osteoporosis
Amsterdam Conference
2014
European Polio Union
Prof Helena Burger
Osteoporosis
00:17:33
www.informed-scientist.org/presentation/osteoporosis
Pain
Amsterdam Conference
2014
European Polio Union
Dr Vincent Tiffreau
Managing Pain in Polio
00:24:15
www.informed-scientist.org/presentation/managing-pain-in-polio
Pain
Copenhagen Conference
2011
European Polio Union
Dr Katharina Stibrant Sunnerhagen
Pain in Polio Survivors
00:22:17
www.informed-scientist.org/presentation/pain-in-polio-survivors
Pain
Sydney Conference
2016
Post-Polio Health International
Dr Stephen de Graaff
Making Sense of Pain in the Polio Survivor
00:28:31
www.poliohealth.org.au/steve-de-graaff-pain/
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
Cyndi Jones
Spirituality in Disability
00:20:17
www.poliohealth.org.au/cyndi-jones/
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
Dr Lawrence C Becker
Developing a Personal Philosophy about Disability
00:16:35
www.poliohealth.org.au/larry-becker/
Physical Activity
Amsterdam Conference
2014
European Polio Union
Cecilia Winberg
Physical Activity in Persons with Late Effects of Polio
00:10:28
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
Physiotherapy
Amsterdam Conference
2014
European Polio Union
Merete Bertelsen
Physiotherapy and Occupational Therapy
00:56:35
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
Physiotherapy
PPS: The Australian Experience
2005
Polio Network Victoria
Cathy White with Tricia Malowney
Physiotherapy
00:06:31
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Master Class in Physiotherapy Assessments and Exercise Therapy
01:50:17
www.poliohealth.org.au/physiotherapy-master-class/
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
Merete Bertelsen
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
00:26:36
www.poliohealth.org.au/merete-bertelsen/
Polio Virus
St Louis Conference
2014
Post-Polio Health International
Dr Antonio Toniolo
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
00:10:53
www.poliohealth.org.au/antonio-toniolo/
Polio Virus
Sydney Conference
2016
Post-Polio Health International
Dr Antonio Toniolo
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
00:33:24
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
Post-Polio Clinic
Amsterdam Conference
2014
European Polio Union
Merete Bertelsen
PTU’s Rehabilitation Centre
00:26:09
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
Posture
St Louis Conference
2014
Post-Polio Health International
Dr Holly H Wise
The Importance of Posture
00:16:49
www.poliohealth.org.au/holly-wise/
Psychology
Copenhagen Conference
2011
European Polio Union
Dr Alain Yelnik
The Psychological Aspects of Polio Survivors Through Their Life Experience
00:20:56
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
Psychology
Polio Today
2009
Salk Institute
Dr Susan Perlman
What are the Psychological Factors Associated with PPS?
00:01:54
www.poliohealth.org.au/dr-susan-perlman-video-04/
Psychology
St Louis Conference
2014
Post-Polio Health International
Dr Rhoda Olkin
Disability Affirmative Therapy
00:22:47
www.poliohealth.org.au/rhoda-olkin/
Psychology
Sydney Conference
2016
Post-Polio Health International
Stephanie T Machell
Polio and PPS: Changing Identities
00:19:01
www.poliohealth.org.au/stephanie-machell-changing-identities/
Relationships
St Louis Conference
2014
Post-Polio Health International
Stephanie T Machell
Relationships
00:14:18
www.poliohealth.org.au/stephanie-machell/
Research
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
00:25:05
www.poliohealth.org.au/pps-shades-of-grey-research/
Research
Sydney Conference
2016
Post-Polio Health International
Joan L Headley
Post-Polio Research: Why and What?
00:23:14
www.poliohealth.org.au/joan-headley/
Resources
PPS: The Australian Experience
2005
Polio Network Victoria
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Strategies and Resources That Can Help You
00:04:10
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
Respiratory
Copenhagen Conference
2011
European Polio Union
Dr Michael Laub
Respiration and Sleep
00:20:23
www.informed-scientist.org/presentation/respiration-and-sleep
Respiratory
PPS: The Australian Experience
2005
Polio Network Victoria
Anne Duncan with Mary Reid
Respiratory Help
00:04:47
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
Respiratory
St Louis Conference
2014
Post-Polio Health International
Dr John R Bach
Ways to Avoid Respiratory Complications of Postpoliomyelitis
00:27:41
www.poliohealth.org.au/john-bach/
Respiratory
Support Group Presentations
2012
Polio NSW
Dr Peter Nolan
Cough, Spit and Breathlessness
01:07:24
www.poliohealth.org.au/dr-peter-nolan/
Restless Legs
Amsterdam Conference
2014
European Polio Union
E Portell
Restless Legs Syndrome in Patients with Poliomyelitis
00:11:29
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
Self-Assessment
Polio Today
2009
Salk Institute
Dr Susan Perlman
What are Some Self-Assessment Tests for PPS?
00:02:41
www.poliohealth.org.au/dr-susan-perlman-video-11/
Self-Management
Copenhagen Conference
2011
European Polio Union
Mary-ann Liethof
Australia's Polio Health and Wellness Retreat
00:15:21
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
Sleep
St Louis Conference
2014
Post-Polio Health International
Dr William M DeMayo
Sleep Hygiene
00:28:04
www.poliohealth.org.au/william-demayo/
Sleep
Support Group Presentations
2013
Polio NZ
Dr Andrew Veale
Better Sleep
01:31:51
www.poliohealth.org.au/dr-andrew-veale/
Speech Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
Sue Wilson with Beth Clisby
Speech Therapy
00:04:54
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
Surgery
Amsterdam Conference
2014
European Polio Union
Dr Jagdish Patwa
Orthopedic Surgery in Young Polio Survivors
00:27:53
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
Surgery
Amsterdam Conference
2014
European Polio Union
Matthias Schafroth
Orthopedic Surgery in Post-Polio Syndrome
00:26:13
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
Surgery
Sydney Conference
2016
Post-Polio Health International
Dr Stephen de Graaff
Prehabilitation: Preparing for Surgery
00:17:43
www.poliohealth.org.au/steve-de-graaff-surgery/
Survey
Amsterdam Conference
2014
European Polio Union
Lillian Festvaag
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
00:16:43
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
The Future
Amsterdam Conference
2014
European Polio Union
Dr Jan Lexell
Future Outlooks for the Management of Polio Survivors
00:15:21
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
The Future
Education
2017
Polio Australia
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
Future Proofing Post-Polio Services
00:03:09
www.poliohealth.org.au/future-proofing-services-video/
The Future
PPS: Shades of Grey
2008
Polio Network Victoria
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future of Polio Services
00:16:27
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
Treatment
Amsterdam Conference
2014
European Polio Union
Dr Kristian Borg
Treatment of Young Polio Survivors In and Outside Europe
00:09:50
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
Treatment
Amsterdam Conference
2014
European Polio Union
Dr Peter Arlien Soborg
IVIG Treatment in Post-Polio Patients in Denmark
00:09:02
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
Treatment
Amsterdam Conference
2014
European Polio Union
Prof Frans Nollet
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
00:11:44
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
Treatment
Polio Today
2009
Salk Institute
Dr Susan Perlman
Are There any New PPS Treatments on the Horizon?
00:02:24
www.poliohealth.org.au/dr-susan-perlman-video-15/
Treatment
Sydney Conference
2016
Post-Polio Health International
Prof Frans Nollet
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
00:19:47
www.poliohealth.org.au/frans-nollet/
Ventilation
Amsterdam Conference
2014
European Polio Union
Dr Michael Gaytant
Ventilatory Support in Patients with Post-Polio Syndrome
00:19:00
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
Ventilation
Sydney Conference
2016
Post-Polio Health International
Anne Duncan
Finding the Right Mask
00:15:01
www.poliohealth.org.au/anne-duncan-mask/
Ventilation
Sydney Conference
2016
Post-Polio Health International
Anne Duncan
Ventilation Advancements for Polio Patients Over the Decades
00:20:33
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
Voiding
Copenhagen Conference
2011
European Polio Union
Dr Lise Kay
Voiding and Bowel Problems
00:21:15
www.informed-scientist.org/presentation/voiding-and-bowel-problems
Walking
Amsterdam Conference
2014
European Polio Union
Christina Brogardh
How to Assess Walking in Persons with Late Effects of Polio
00:15:26
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
Presenter
Presentation Title
Length (h:m:s)
Category
Series
Year
Publisher
Video Link
Anne Duncan
Finding the Right Mask
00:15:01
Ventilation
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/anne-duncan-mask/
Anne Duncan
Ventilation Advancements for Polio Patients Over the Decades
00:20:33
Ventilation
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
Anne Duncan with Mary Reid
Respiratory Help
00:04:47
Respiratory
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
Audrey J King
Growing Older with Grace
00:15:08
Ageing
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/audrey-king/
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
Future Proofing Post-Polio Services
00:03:09
The Future
Education
2017
Polio Australia
www.poliohealth.org.au/future-proofing-services-video/
Cathy White with Tricia Malowney
Physiotherapy
00:06:31
Physiotherapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Master Class in Physiotherapy Assessments and Exercise Therapy
01:50:17
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/physiotherapy-master-class/
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice Workshops
00:02:59
Clinical Practice
Education
2017
Polio Australia
www.poliohealth.org.au/clinical-practice-workshops-video/
Cecilia Winberg
Physical Activity in Persons with Late Effects of Polio
00:10:28
Physical Activity
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
Christina Brogardh
How to Assess Walking in Persons with Late Effects of Polio
00:15:26
Walking
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
Cyndi Jones
Spirituality in Disability
00:20:17
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/cyndi-jones/
Darren Pereira
Orthotic Needs of Younger Polio Survivors
00:23:37
Orthotics
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/darren-pereira-orthotic-needs/
Darren Pereira with Karim Degal
Orthotics
00:03:24
Orthotics
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
Dr Alain Yelnik
The Psychological Aspects of Polio Survivors Through Their Life Experience
00:20:56
Psychology
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
Dr Alice Bickerstaffe
Falls in Polio Survivors
00:19:59
Falls
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/falls-among-polio-survivors
Dr Andrew Veale
Better Sleep
01:31:51
Sleep
Support Group Presentations
2013
Polio NZ
www.poliohealth.org.au/dr-andrew-veale/
Dr Antonio Toniolo
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
00:10:53
Polio Virus
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/antonio-toniolo/
Dr Antonio Toniolo
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
00:33:24
Polio Virus
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
Dr Barbara Bocker
Latest News in Orthotics for Polio Survivors
00:19:37
Orthotics
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/orthosis-management
Dr Carol Vandenakker-Albanese
Components of Comprehensive Post-Polio Management
00:28:13
Management
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/carol-vandenakker-albanese/
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future of Polio Services
00:16:27
The Future
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
Dr Deirdre Murray
Exercise – From Theory to Practice
00:10:51
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
Dr Deirdre Murray
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
00:13:14
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
Dr Frederick M Maynard
Components of a Post-Polio Evaluation
00:35:59
Evaluation
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/fred-maynard/
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Best Practice Management of the Late Effects of Polio
00:05:10
Management
Education
2017
Polio Australia
www.poliohealth.org.au/best-practice-management-video/
Dr Holly H Wise
The Importance of Posture
00:16:49
Posture
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/holly-wise/
Dr Irene Tersteeg
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
00:16:10
Comorbidity
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Managing Symptoms
00:56:12
Management
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
Dr Jagdish Patwa
Orthopedic Surgery in Young Polio Survivors
00:27:53
Surgery
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
Dr Jan Lexell
Aging and Muscle Function Including Sarcopenia
00:19:58
Ageing
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
Dr Jan Lexell
Future Outlooks for the Management of Polio Survivors
00:15:21
The Future
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
Dr John R Bach
Ways to Avoid Respiratory Complications of Postpoliomyelitis
00:27:41
Respiratory
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/john-bach/
Dr John Tierney, Gillian Thomas, Susan Ellis
Polio Survivors Talk About the Late Effects of Polio
00:02:22
Late Effects of Polio / Post-Polio Syndrome
Education
2017
Polio Australia
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
Dr Katharina Stibrant Sunnerhagen
Pain in Polio Survivors
00:22:17
Pain
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/pain-in-polio-survivors
Dr Kristian Borg
Treatment of Young Polio Survivors In and Outside Europe
00:09:50
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
00:06:01
Diagnosis
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
Dr Lawrence C Becker
Developing a Personal Philosophy about Disability
00:16:35
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/larry-becker/
Dr Lise Kay
Anesthesiology: A Risk in PPS?
00:25:44
Anaesthesia
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
Dr Lise Kay
Medication for Co-Morbidity
00:13:59
Medication
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
Dr Lise Kay
Voiding and Bowel Problems
00:21:15
Voiding
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/voiding-and-bowel-problems
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
The Big Picture
00:35:54
Late Effects of Polio / Post-Polio Syndrome
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
Dr Michael Gaytant
Ventilatory Support in Patients with Post-Polio Syndrome
00:19:00
Ventilation
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
Dr Michael Laub
Respiration and Sleep
00:20:23
Respiratory
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/respiration-and-sleep
Dr Peter Arlien Soborg
IVIG Treatment in Post-Polio Patients in Denmark
00:09:02
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
Dr Peter Nolan
Cough, Spit and Breathlessness
01:07:24
Respiratory
Support Group Presentations
2012
Polio NSW
www.poliohealth.org.au/dr-peter-nolan/
Dr Peter Nolan
PPS: An Orphan Disease
01:06:10
Late Effects of Polio / Post-Polio Syndrome
Support Group Presentations
2012
Polio NSW
www.poliohealth.org.au/dr-peter-nolan/
Dr Rhoda Olkin
Disability Affirmative Therapy
00:22:47
Psychology
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/rhoda-olkin/
Dr Richard L Bruno
Dr Rchard Bruno's 10 Commandments
00:06:59
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
Dr Selma Calmes
Anesthesia for Post-Polio Patients
00:25:26
Anaesthesia
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
Dr Selma Calmes
Polio and Anesthesia
00:29:46
Anaesthesia
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/selma-calmes/
Dr Stephen de Graaff
Dr Stephen de Graaff Talks About Post-Polio Syndrome
00:14:25
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
Dr Stephen de Graaff
Making Sense of Pain in the Polio Survivor
00:28:31
Pain
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/steve-de-graaff-pain/
Dr Stephen de Graaff
Prehabilitation: Preparing for Surgery
00:17:43
Surgery
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/steve-de-graaff-surgery/
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners
00:04:13
Medical Practitioners / Therapists
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
Dr Susan Perlman
Are There any New PPS Treatments on the Horizon?
00:02:24
Treatment
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-15/
Dr Susan Perlman
Can Blood Tests Help Diagnose PPS?
00:01:12
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-09/
Dr Susan Perlman
Can Lifestyle Exacerbate Motor Neuron Loss?
00:01:37
Motor Neuron
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-06/
Dr Susan Perlman
Can PPS be Treated with Medication?
00:02:26
Medication
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-14/
Dr Susan Perlman
Can the Onset of PPS be Caused by a Fall or Trauma?
00:02:18
Falls
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-05/
Dr Susan Perlman
What are Some Self-Assessment Tests for PPS?
00:02:41
Self-Assessment
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-11/
Dr Susan Perlman
What are the Psychological Factors Associated with PPS?
00:01:54
Psychology
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-04/
Dr Susan Perlman
What are the Recommendations to Effectively Manage PPS?
00:02:37
Management
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-12/
Dr Susan Perlman
What is the Biological Cause of PPS?
00:03:22
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-03/
Dr Susan Perlman
What Type of Exercise is Beneficial to PPS Patients?
00:01:59
Exercise
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-13/
Dr Susan Perlman
What Type of Physician Can Best Diagnose PPS?
00:01:28
Medical Practitioners / Therapists
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-07/
Dr Susan Perlman
When Does PPS Manifest Itself? Why?
00:03:28
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-02/
Dr Susan Perlman
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
00:01:49
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-10/
Dr Susan Perlman
Which Tests are Performed to Diagnose PPS?
00:04:02
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-08/
Dr Susan Perlman
Who is Your Typical PPS Patient?
00:01:32
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-01/
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
00:21:02
Clinical Structures
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Therapists
00:07:47
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-therapists/
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
00:25:05
Research
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-research/
Dr Vincent Tiffreau
Managing Pain in Polio
00:24:15
Pain
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/managing-pain-in-polio
Dr William M DeMayo
Sleep Hygiene
00:28:04
Sleep
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/william-demayo/
E Portell
Restless Legs Syndrome in Patients with Poliomyelitis
00:11:29
Restless Legs
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
Eric Voorn
Cardiorespiratory Exercise
00:12:35
Cardiorespiratory
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
Fieke Koopman
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
00:11:33
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
Gnanaletchumy M Jegasothy (Jega)
An Interview with Jega by NZ TV Central News
00:06:49
Late Effects of Polio / Post-Polio Syndrome
Interviews
2012
NZ TV Central
www.poliohealth.org.au/gm-jegasothy/
Joan L Headley
Post-Polio Research: Why and What?
00:23:14
Research
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/joan-headley/
Joan L Headley, Richard Daggett
Information and Non-Clinical Services
00:08:48
Non-Clinical Services
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
Kees Noppe
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
00:40:53
Orthotics
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
Kristian Borg, John McFarlane
Summary of Main Conference Results
00:07:56
Conference Summary
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/summary-of-main-conference-results
Lillian Festvaag
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
00:16:43
Survey
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Strategies and Resources That Can Help You
00:04:10
Resources
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
00:04:16
Occupational Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
Mary-ann Liethof
About the Participants
00:05:23
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
Mary-ann Liethof
Australia's Polio Health and Wellness Retreat
00:15:21
Self-Management
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
Mary-ann Liethof
Post-Polio Conference - Sydney 2016
00:01:56
Conference Summary
Sydney Conference
2016
Polio Australia
www.poliohealth.org.au/2016-conference-overview-video/
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Polio Australia in Profile
00:05:07
Advocacy
Education
2017
Polio Australia
www.poliohealth.org.au/polio-australia-profile-video/
Matthias Schafroth
Orthopedic Surgery in Post-Polio Syndrome
00:26:13
Surgery
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
Merete Bertelsen
Physiotherapy and Occupational Therapy
00:56:35
Physiotherapy
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
Merete Bertelsen
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
00:26:36
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/merete-bertelsen/
Merete Bertelsen
PTU’s Rehabilitation Centre
00:26:09
Post-Polio Clinic
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
Prof Frans Nollet
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
00:19:47
Treatment
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/frans-nollet/
Prof Frans Nollet
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
00:11:44
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
Prof Helena Burger
Osteoporosis
00:17:33
Osteoporosis
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/osteoporosis
Stephanie T Machell
Polio and PPS: Changing Identities
00:19:01
Psychology
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/stephanie-machell-changing-identities/
Stephanie T Machell
Relationships
00:14:18
Relationships
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/stephanie-machell/
Sue Wilson with Beth Clisby
Speech Therapy
00:04:54
Speech Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Introduction
00:06:10
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-introduction/
William G Stothers
Self-Advocacy and Community Advocacy
00:19:19
Advocacy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/william-stothers/
Presentation Title
Length (h:m:s)
Presenter
Category
Series
Year
Publisher
Video Link
About the Participants
00:05:23
Mary-ann Liethof
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
Aging and Muscle Function Including Sarcopenia
00:19:58
Dr Jan Lexell
Ageing
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
An Interview with Jega by NZ TV Central News
00:06:49
Gnanaletchumy M Jegasothy (Jega)
Late Effects of Polio / Post-Polio Syndrome
Interviews
2012
NZ TV Central
www.poliohealth.org.au/gm-jegasothy/
Anesthesia for Post-Polio Patients
00:25:26
Dr Selma Calmes
Anaesthesia
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
Anesthesiology: A Risk in PPS?
00:25:44
Dr Lise Kay
Anaesthesia
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
00:10:53
Dr Antonio Toniolo
Polio Virus
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/antonio-toniolo/
Are There any New PPS Treatments on the Horizon?
00:02:24
Dr Susan Perlman
Treatment
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-15/
Australia's Polio Health and Wellness Retreat
00:15:21
Mary-ann Liethof
Self-Management
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
Best Practice Management of the Late Effects of Polio
00:05:10
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Management
Education
2017
Polio Australia
www.poliohealth.org.au/best-practice-management-video/
Better Sleep
01:31:51
Dr Andrew Veale
Sleep
Support Group Presentations
2013
Polio NZ
www.poliohealth.org.au/dr-andrew-veale/
Can Blood Tests Help Diagnose PPS?
00:01:12
Dr Susan Perlman
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-09/
Can Lifestyle Exacerbate Motor Neuron Loss?
00:01:37
Dr Susan Perlman
Motor Neuron
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-06/
Can PPS be Treated with Medication?
00:02:26
Dr Susan Perlman
Medication
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-14/
Can the Onset of PPS be Caused by a Fall or Trauma?
00:02:18
Dr Susan Perlman
Falls
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-05/
Cardiorespiratory Exercise
00:12:35
Eric Voorn
Cardiorespiratory
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
Clinical Practice Workshops
00:02:59
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice
Education
2017
Polio Australia
www.poliohealth.org.au/clinical-practice-workshops-video/
Clinical Structures
00:21:02
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
Components of a Post-Polio Evaluation
00:35:59
Dr Frederick M Maynard
Evaluation
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/fred-maynard/
Components of Comprehensive Post-Polio Management
00:28:13
Dr Carol Vandenakker-Albanese
Management
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/carol-vandenakker-albanese/
Cough, Spit and Breathlessness
01:07:24
Dr Peter Nolan
Respiratory
Support Group Presentations
2012
Polio NSW
www.poliohealth.org.au/dr-peter-nolan/
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
00:40:53
Kees Noppe
Orthotics
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
Developing a Personal Philosophy about Disability
00:16:35
Dr Lawrence C Becker
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/larry-becker/
Diagnosis
00:06:01
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
Disability Affirmative Therapy
00:22:47
Dr Rhoda Olkin
Psychology
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/rhoda-olkin/
Dr Rchard Bruno's 10 Commandments
00:06:59
Dr Richard L Bruno
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
Dr Stephen de Graaff Talks About Post-Polio Syndrome
00:14:25
Dr Stephen de Graaff
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
00:11:33
Fieke Koopman
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
Exercise – From Theory to Practice
00:10:51
Dr Deirdre Murray
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
Falls in Polio Survivors
00:19:59
Dr Alice Bickerstaffe
Falls
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/falls-among-polio-survivors
Finding the Right Mask
00:15:01
Anne Duncan
Ventilation
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/anne-duncan-mask/
Future Outlooks for the Management of Polio Survivors
00:15:21
Dr Jan Lexell
The Future
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
Future Proofing Post-Polio Services
00:03:09
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
The Future
Education
2017
Polio Australia
www.poliohealth.org.au/future-proofing-services-video/
Growing Older with Grace
00:15:08
Audrey J King
Ageing
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/audrey-king/
How to Assess Walking in Persons with Late Effects of Polio
00:15:26
Christina Brogardh
Walking
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
00:16:10
Dr Irene Tersteeg
Comorbidity
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
Information and Non-Clinical Services
00:08:48
Joan L Headley, Richard Daggett
Non-Clinical Services
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
Introduction
00:06:10
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-introduction/
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
00:19:47
Prof Frans Nollet
Treatment
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/frans-nollet/
IVIG Treatment in Post-Polio Patients in Denmark
00:09:02
Dr Peter Arlien Soborg
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
Latest News in Orthotics for Polio Survivors
00:19:37
Dr Barbara Bocker
Orthotics
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/orthosis-management
Making Sense of Pain in the Polio Survivor
00:28:31
Dr Stephen de Graaff
Pain
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/steve-de-graaff-pain/
Managing Pain in Polio
00:24:15
Dr Vincent Tiffreau
Pain
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/managing-pain-in-polio
Managing Symptoms
00:56:12
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Management
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
Master Class in Physiotherapy Assessments and Exercise Therapy
01:50:17
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/physiotherapy-master-class/
Medical Practitioners
00:04:13
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners / Therapists
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
Medication for Co-Morbidity
00:13:59
Dr Lise Kay
Medication
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
00:16:43
Lillian Festvaag
Survey
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
Occupational Therapy
00:04:16
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
Orthopedic Surgery in Post-Polio Syndrome
00:26:13
Matthias Schafroth
Surgery
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
Orthopedic Surgery in Young Polio Survivors
00:27:53
Dr Jagdish Patwa
Surgery
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
Orthotic Needs of Younger Polio Survivors
00:23:37
Darren Pereira
Orthotics
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/darren-pereira-orthotic-needs/
Orthotics
00:03:24
Darren Pereira with Karim Degal
Orthotics
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
Osteoporosis
00:17:33
Prof Helena Burger
Osteoporosis
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/osteoporosis
Pain in Polio Survivors
00:22:17
Dr Katharina Stibrant Sunnerhagen
Pain
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/pain-in-polio-survivors
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
00:11:44
Prof Frans Nollet
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
Physical Activity in Persons with Late Effects of Polio
00:10:28
Cecilia Winberg
Physical Activity
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
Physiotherapy
00:06:31
Cathy White with Tricia Malowney
Physiotherapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
Physiotherapy and Occupational Therapy
00:56:35
Merete Bertelsen
Physiotherapy
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
00:26:36
Merete Bertelsen
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/merete-bertelsen/
Polio and Anesthesia
00:29:46
Dr Selma Calmes
Anaesthesia
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/selma-calmes/
Polio and PPS: Changing Identities
00:19:01
Stephanie T Machell
Psychology
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/stephanie-machell-changing-identities/
Polio Australia in Profile
00:05:07
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Advocacy
Education
2017
Polio Australia
www.poliohealth.org.au/polio-australia-profile-video/
Polio Survivors Talk About the Late Effects of Polio
00:02:22
Dr John Tierney, Gillian Thomas, Susan Ellis
Late Effects of Polio / Post-Polio Syndrome
Education
2017
Polio Australia
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
Post-Polio Conference - Sydney 2016
00:01:56
Mary-ann Liethof
Conference Summary
Sydney Conference
2016
Polio Australia
www.poliohealth.org.au/2016-conference-overview-video/
Post-Polio Research: Why and What?
00:23:14
Joan L Headley
Research
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/joan-headley/
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
00:33:24
Dr Antonio Toniolo
Polio Virus
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
PPS: An Orphan Disease
01:06:10
Dr Peter Nolan
Late Effects of Polio / Post-Polio Syndrome
Support Group Presentations
2012
Polio NSW
www.poliohealth.org.au/dr-peter-nolan/
Prehabilitation: Preparing for Surgery
00:17:43
Dr Stephen de Graaff
Surgery
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/steve-de-graaff-surgery/
PTU’s Rehabilitation Centre
00:26:09
Merete Bertelsen
Post-Polio Clinic
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
Relationships
00:14:18
Stephanie T Machell
Relationships
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/stephanie-machell/
Research
00:25:05
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-research/
Respiration and Sleep
00:20:23
Dr Michael Laub
Respiratory
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/respiration-and-sleep
Respiratory Help
00:04:47
Anne Duncan with Mary Reid
Respiratory
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
Restless Legs Syndrome in Patients with Poliomyelitis
00:11:29
E Portell
Restless Legs
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
Self-Advocacy and Community Advocacy
00:19:19
William G Stothers
Advocacy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/william-stothers/
Sleep Hygiene
00:28:04
Dr William M DeMayo
Sleep
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/william-demayo/
Speech Therapy
00:04:54
Sue Wilson with Beth Clisby
Speech Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
Spirituality in Disability
00:20:17
Cyndi Jones
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/cyndi-jones/
Strategies and Resources That Can Help You
00:04:10
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Resources
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
Summary of Main Conference Results
00:07:56
Kristian Borg, John McFarlane
Conference Summary
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/summary-of-main-conference-results
The Big Picture
00:35:54
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
Late Effects of Polio / Post-Polio Syndrome
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
00:13:14
Dr Deirdre Murray
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
The Future of Polio Services
00:16:27
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
The Importance of Posture
00:16:49
Dr Holly H Wise
Posture
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/holly-wise/
The Psychological Aspects of Polio Survivors Through Their Life Experience
00:20:56
Dr Alain Yelnik
Psychology
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
Therapists
00:07:47
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-therapists/
Treatment of Young Polio Survivors In and Outside Europe
00:09:50
Dr Kristian Borg
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
Ventilation Advancements for Polio Patients Over the Decades
00:20:33
Anne Duncan
Ventilation
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
Ventilatory Support in Patients with Post-Polio Syndrome
00:19:00
Dr Michael Gaytant
Ventilation
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
Voiding and Bowel Problems
00:21:15
Dr Lise Kay
Voiding
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/voiding-and-bowel-problems
Ways to Avoid Respiratory Complications of Postpoliomyelitis
00:27:41
Dr John R Bach
Respiratory
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/john-bach/
What are Some Self-Assessment Tests for PPS?
00:02:41
Dr Susan Perlman
Self-Assessment
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-11/
What are the Psychological Factors Associated with PPS?
00:01:54
Dr Susan Perlman
Psychology
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-04/
What are the Recommendations to Effectively Manage PPS?
00:02:37
Dr Susan Perlman
Management
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-12/
What is the Biological Cause of PPS?
00:03:22
Dr Susan Perlman
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-03/
What Type of Exercise is Beneficial to PPS Patients?
00:01:59
Dr Susan Perlman
Exercise
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-13/
What Type of Physician Can Best Diagnose PPS?
00:01:28
Dr Susan Perlman
Medical Practitioners / Therapists
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-07/
When Does PPS Manifest Itself? Why?
00:03:28
Dr Susan Perlman
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-02/
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
00:01:49
Dr Susan Perlman
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-10/
Which Tests are Performed to Diagnose PPS?
00:04:02
Dr Susan Perlman
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-08/
Who is Your Typical PPS Patient?
00:01:32
Dr Susan Perlman
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-01/
Length (h:m:s)
Presentation Title
Presenter
Category
Series
Year
Publisher
Video Link
00:01:12
Can Blood Tests Help Diagnose PPS?
Dr Susan Perlman
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-09/
00:01:28
What Type of Physician Can Best Diagnose PPS?
Dr Susan Perlman
Medical Practitioners / Therapists
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-07/
00:01:32
Who is Your Typical PPS Patient?
Dr Susan Perlman
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-01/
00:01:37
Can Lifestyle Exacerbate Motor Neuron Loss?
Dr Susan Perlman
Motor Neuron
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-06/
00:01:49
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
Dr Susan Perlman
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-10/
00:01:54
What are the Psychological Factors Associated with PPS?
Dr Susan Perlman
Psychology
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-04/
00:01:56
Post-Polio Conference - Sydney 2016
Mary-ann Liethof
Conference Summary
Sydney Conference
2016
Polio Australia
www.poliohealth.org.au/2016-conference-overview-video/
00:01:59
What Type of Exercise is Beneficial to PPS Patients?
Dr Susan Perlman
Exercise
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-13/
00:02:18
Can the Onset of PPS be Caused by a Fall or Trauma?
Dr Susan Perlman
Falls
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-05/
00:02:22
Polio Survivors Talk About the Late Effects of Polio
Dr John Tierney, Gillian Thomas, Susan Ellis
Late Effects of Polio / Post-Polio Syndrome
Education
2017
Polio Australia
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
00:02:24
Are There any New PPS Treatments on the Horizon?
Dr Susan Perlman
Treatment
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-15/
00:02:26
Can PPS be Treated with Medication?
Dr Susan Perlman
Medication
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-14/
00:02:37
What are the Recommendations to Effectively Manage PPS?
Dr Susan Perlman
Management
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-12/
00:02:41
What are Some Self-Assessment Tests for PPS?
Dr Susan Perlman
Self-Assessment
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-11/
00:02:59
Clinical Practice Workshops
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice
Education
2017
Polio Australia
www.poliohealth.org.au/clinical-practice-workshops-video/
00:03:09
Future Proofing Post-Polio Services
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
The Future
Education
2017
Polio Australia
www.poliohealth.org.au/future-proofing-services-video/
00:03:22
What is the Biological Cause of PPS?
Dr Susan Perlman
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-03/
00:03:24
Orthotics
Darren Pereira with Karim Degal
Orthotics
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
00:03:28
When Does PPS Manifest Itself? Why?
Dr Susan Perlman
Late Effects of Polio / Post-Polio Syndrome
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-02/
00:04:02
Which Tests are Performed to Diagnose PPS?
Dr Susan Perlman
Diagnosis
Polio Today
2009
Salk Institute
www.poliohealth.org.au/dr-susan-perlman-video-08/
00:04:10
Strategies and Resources That Can Help You
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Resources
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
00:04:13
Medical Practitioners
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners / Therapists
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
00:04:16
Occupational Therapy
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
00:04:47
Respiratory Help
Anne Duncan with Mary Reid
Respiratory
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
00:04:54
Speech Therapy
Sue Wilson with Beth Clisby
Speech Therapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
00:05:07
Polio Australia in Profile
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Advocacy
Education
2017
Polio Australia
www.poliohealth.org.au/polio-australia-profile-video/
00:05:10
Best Practice Management of the Late Effects of Polio
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Management
Education
2017
Polio Australia
www.poliohealth.org.au/best-practice-management-video/
00:05:23
About the Participants
Mary-ann Liethof
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
00:06:01
Diagnosis
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
00:06:10
Introduction
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-introduction/
00:06:31
Physiotherapy
Cathy White with Tricia Malowney
Physiotherapy
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
00:06:49
An Interview with Jega by NZ TV Central News
Gnanaletchumy M Jegasothy (Jega)
Late Effects of Polio / Post-Polio Syndrome
Interviews
2012
NZ TV Central
www.poliohealth.org.au/gm-jegasothy/
00:06:59
Dr Rchard Bruno's 10 Commandments
Dr Richard L Bruno
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
00:07:47
Therapists
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Medical Practitioners / Therapists
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-therapists/
00:07:56
Summary of Main Conference Results
Kristian Borg, John McFarlane
Conference Summary
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/summary-of-main-conference-results
00:08:48
Information and Non-Clinical Services
Joan L Headley, Richard Daggett
Non-Clinical Services
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
00:09:02
IVIG Treatment in Post-Polio Patients in Denmark
Dr Peter Arlien Soborg
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
00:09:50
Treatment of Young Polio Survivors In and Outside Europe
Dr Kristian Borg
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
00:10:28
Physical Activity in Persons with Late Effects of Polio
Cecilia Winberg
Physical Activity
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
00:10:51
Exercise – From Theory to Practice
Dr Deirdre Murray
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
00:10:53
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
Dr Antonio Toniolo
Polio Virus
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/antonio-toniolo/
00:11:29
Restless Legs Syndrome in Patients with Poliomyelitis
E Portell
Restless Legs
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
00:11:33
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
Fieke Koopman
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
00:11:44
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
Prof Frans Nollet
Treatment
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
00:12:35
Cardiorespiratory Exercise
Eric Voorn
Cardiorespiratory
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
00:13:14
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
Dr Deirdre Murray
Exercise
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
00:13:59
Medication for Co-Morbidity
Dr Lise Kay
Medication
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
00:14:18
Relationships
Stephanie T Machell
Relationships
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/stephanie-machell/
00:14:25
Dr Stephen de Graaff Talks About Post-Polio Syndrome
Dr Stephen de Graaff
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
2005
Polio Network Victoria
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
00:15:01
Finding the Right Mask
Anne Duncan
Ventilation
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/anne-duncan-mask/
00:15:08
Growing Older with Grace
Audrey J King
Ageing
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/audrey-king/
00:15:21
Australia's Polio Health and Wellness Retreat
Mary-ann Liethof
Self-Management
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
00:15:21
Future Outlooks for the Management of Polio Survivors
Dr Jan Lexell
The Future
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
00:15:26
How to Assess Walking in Persons with Late Effects of Polio
Christina Brogardh
Walking
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
00:16:10
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
Dr Irene Tersteeg
Comorbidity
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
00:16:27
The Future of Polio Services
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
00:16:35
Developing a Personal Philosophy about Disability
Dr Lawrence C Becker
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/larry-becker/
00:16:43
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
Lillian Festvaag
Survey
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
00:16:49
The Importance of Posture
Dr Holly H Wise
Posture
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/holly-wise/
00:17:33
Osteoporosis
Prof Helena Burger
Osteoporosis
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/osteoporosis
00:17:43
Prehabilitation: Preparing for Surgery
Dr Stephen de Graaff
Surgery
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/steve-de-graaff-surgery/
00:19:00
Ventilatory Support in Patients with Post-Polio Syndrome
Dr Michael Gaytant
Ventilation
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
00:19:01
Polio and PPS: Changing Identities
Stephanie T Machell
Psychology
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/stephanie-machell-changing-identities/
00:19:19
Self-Advocacy and Community Advocacy
William G Stothers
Advocacy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/william-stothers/
00:19:37
Latest News in Orthotics for Polio Survivors
Dr Barbara Bocker
Orthotics
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/orthosis-management
00:19:47
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
Prof Frans Nollet
Treatment
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/frans-nollet/
00:19:58
Aging and Muscle Function Including Sarcopenia
Dr Jan Lexell
Ageing
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
00:19:59
Falls in Polio Survivors
Dr Alice Bickerstaffe
Falls
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/falls-among-polio-survivors
00:20:17
Spirituality in Disability
Cyndi Jones
Personal Philosophy
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/cyndi-jones/
00:20:23
Respiration and Sleep
Dr Michael Laub
Respiratory
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/respiration-and-sleep
00:20:33
Ventilation Advancements for Polio Patients Over the Decades
Anne Duncan
Ventilation
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
00:20:56
The Psychological Aspects of Polio Survivors Through Their Life Experience
Dr Alain Yelnik
Psychology
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
00:21:02
Clinical Structures
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
00:21:15
Voiding and Bowel Problems
Dr Lise Kay
Voiding
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/voiding-and-bowel-problems
00:22:17
Pain in Polio Survivors
Dr Katharina Stibrant Sunnerhagen
Pain
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/pain-in-polio-survivors
00:22:47
Disability Affirmative Therapy
Dr Rhoda Olkin
Psychology
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/rhoda-olkin/
00:23:14
Post-Polio Research: Why and What?
Joan L Headley
Research
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/joan-headley/
00:23:37
Orthotic Needs of Younger Polio Survivors
Darren Pereira
Orthotics
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/darren-pereira-orthotic-needs/
00:24:15
Managing Pain in Polio
Dr Vincent Tiffreau
Pain
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/managing-pain-in-polio
00:25:05
Research
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-research/
00:25:26
Anesthesia for Post-Polio Patients
Dr Selma Calmes
Anaesthesia
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
00:25:44
Anesthesiology: A Risk in PPS?
Dr Lise Kay
Anaesthesia
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
00:26:09
PTU’s Rehabilitation Centre
Merete Bertelsen
Post-Polio Clinic
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
00:26:13
Orthopedic Surgery in Post-Polio Syndrome
Matthias Schafroth
Surgery
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
00:26:36
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
Merete Bertelsen
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/merete-bertelsen/
00:27:41
Ways to Avoid Respiratory Complications of Postpoliomyelitis
Dr John R Bach
Respiratory
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/john-bach/
00:27:53
Orthopedic Surgery in Young Polio Survivors
Dr Jagdish Patwa
Surgery
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
00:28:04
Sleep Hygiene
Dr William M DeMayo
Sleep
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/william-demayo/
00:28:13
Components of Comprehensive Post-Polio Management
Dr Carol Vandenakker-Albanese
Management
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/carol-vandenakker-albanese/
00:28:31
Making Sense of Pain in the Polio Survivor
Dr Stephen de Graaff
Pain
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/steve-de-graaff-pain/
00:29:46
Polio and Anesthesia
Dr Selma Calmes
Anaesthesia
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/selma-calmes/
00:33:24
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
Dr Antonio Toniolo
Polio Virus
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
00:35:54
The Big Picture
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
Late Effects of Polio / Post-Polio Syndrome
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
00:35:59
Components of a Post-Polio Evaluation
Dr Frederick M Maynard
Evaluation
St Louis Conference
2014
Post-Polio Health International
www.poliohealth.org.au/fred-maynard/
00:40:53
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
Kees Noppe
Orthotics
Copenhagen Conference
2011
European Polio Union
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
00:56:12
Managing Symptoms
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Management
PPS: Shades of Grey
2008
Polio Network Victoria
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
00:56:35
Physiotherapy and Occupational Therapy
Merete Bertelsen
Physiotherapy
Amsterdam Conference
2014
European Polio Union
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
01:06:10
PPS: An Orphan Disease
Dr Peter Nolan
Late Effects of Polio / Post-Polio Syndrome
Support Group Presentations
2012
Polio NSW
www.poliohealth.org.au/dr-peter-nolan/
01:07:24
Cough, Spit and Breathlessness
Dr Peter Nolan
Respiratory
Support Group Presentations
2012
Polio NSW
www.poliohealth.org.au/dr-peter-nolan/
01:31:51
Better Sleep
Dr Andrew Veale
Sleep
Support Group Presentations
2013
Polio NZ
www.poliohealth.org.au/dr-andrew-veale/
01:50:17
Master Class in Physiotherapy Assessments and Exercise Therapy
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Physiotherapy
Sydney Conference
2016
Post-Polio Health International
www.poliohealth.org.au/physiotherapy-master-class/
Series
Category
Year
Publisher
Presenter
Presentation Title
Length (h:m:s)
Video Link
Amsterdam Conference
Ageing
2014
European Polio Union
Dr Jan Lexell
Aging and Muscle Function Including Sarcopenia
00:19:58
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
Amsterdam Conference
Anaesthesia
2014
European Polio Union
Dr Lise Kay
Anesthesiology: A Risk in PPS?
00:25:44
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
Amsterdam Conference
Cardiorespiratory
2014
European Polio Union
Eric Voorn
Cardiorespiratory Exercise
00:12:35
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
Amsterdam Conference
Conference Summary
2014
European Polio Union
Kristian Borg, John McFarlane
Summary of Main Conference Results
00:07:56
www.informed-scientist.org/presentation/summary-of-main-conference-results
Amsterdam Conference
Exercise
2014
European Polio Union
Dr Deirdre Murray
Exercise – From Theory to Practice
00:10:51
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
Amsterdam Conference
Exercise
2014
European Polio Union
Dr Deirdre Murray
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
00:13:14
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
Amsterdam Conference
Exercise
2014
European Polio Union
Fieke Koopman
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
00:11:33
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
Amsterdam Conference
Medication
2014
European Polio Union
Dr Lise Kay
Medication for Co-Morbidity
00:13:59
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
Amsterdam Conference
Osteoporosis
2014
European Polio Union
Prof Helena Burger
Osteoporosis
00:17:33
www.informed-scientist.org/presentation/osteoporosis
Amsterdam Conference
Pain
2014
European Polio Union
Dr Vincent Tiffreau
Managing Pain in Polio
00:24:15
www.informed-scientist.org/presentation/managing-pain-in-polio
Amsterdam Conference
Physical Activity
2014
European Polio Union
Cecilia Winberg
Physical Activity in Persons with Late Effects of Polio
00:10:28
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
Amsterdam Conference
Physiotherapy
2014
European Polio Union
Merete Bertelsen
Physiotherapy and Occupational Therapy
00:56:35
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
Amsterdam Conference
Post-Polio Clinic
2014
European Polio Union
Merete Bertelsen
PTU’s Rehabilitation Centre
00:26:09
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
Amsterdam Conference
Restless Legs
2014
European Polio Union
E Portell
Restless Legs Syndrome in Patients with Poliomyelitis
00:11:29
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
Amsterdam Conference
Surgery
2014
European Polio Union
Dr Jagdish Patwa
Orthopedic Surgery in Young Polio Survivors
00:27:53
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
Amsterdam Conference
Surgery
2014
European Polio Union
Matthias Schafroth
Orthopedic Surgery in Post-Polio Syndrome
00:26:13
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
Amsterdam Conference
Survey
2014
European Polio Union
Lillian Festvaag
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
00:16:43
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
Amsterdam Conference
The Future
2014
European Polio Union
Dr Jan Lexell
Future Outlooks for the Management of Polio Survivors
00:15:21
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
Amsterdam Conference
Treatment
2014
European Polio Union
Dr Kristian Borg
Treatment of Young Polio Survivors In and Outside Europe
00:09:50
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
Amsterdam Conference
Treatment
2014
European Polio Union
Dr Peter Arlien Soborg
IVIG Treatment in Post-Polio Patients in Denmark
00:09:02
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
Amsterdam Conference
Treatment
2014
European Polio Union
Prof Frans Nollet
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
00:11:44
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
Amsterdam Conference
Ventilation
2014
European Polio Union
Dr Michael Gaytant
Ventilatory Support in Patients with Post-Polio Syndrome
00:19:00
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
Amsterdam Conference
Walking
2014
European Polio Union
Christina Brogardh
How to Assess Walking in Persons with Late Effects of Polio
00:15:26
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
Copenhagen Conference
Anaesthesia
2011
European Polio Union
Dr Selma Calmes
Anesthesia for Post-Polio Patients
00:25:26
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
Copenhagen Conference
Comorbidity
2011
European Polio Union
Dr Irene Tersteeg
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
00:16:10
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
Copenhagen Conference
Falls
2011
European Polio Union
Dr Alice Bickerstaffe
Falls in Polio Survivors
00:19:59
www.informed-scientist.org/presentation/falls-among-polio-survivors
Copenhagen Conference
Orthotics
2011
European Polio Union
Dr Barbara Bocker
Latest News in Orthotics for Polio Survivors
00:19:37
www.informed-scientist.org/presentation/orthosis-management
Copenhagen Conference
Orthotics
2011
European Polio Union
Kees Noppe
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
00:40:53
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
Copenhagen Conference
Pain
2011
European Polio Union
Dr Katharina Stibrant Sunnerhagen
Pain in Polio Survivors
00:22:17
www.informed-scientist.org/presentation/pain-in-polio-survivors
Copenhagen Conference
Psychology
2011
European Polio Union
Dr Alain Yelnik
The Psychological Aspects of Polio Survivors Through Their Life Experience
00:20:56
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
Copenhagen Conference
Respiratory
2011
European Polio Union
Dr Michael Laub
Respiration and Sleep
00:20:23
www.informed-scientist.org/presentation/respiration-and-sleep
Copenhagen Conference
Self-Management
2011
European Polio Union
Mary-ann Liethof
Australia's Polio Health and Wellness Retreat
00:15:21
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
Copenhagen Conference
Voiding
2011
European Polio Union
Dr Lise Kay
Voiding and Bowel Problems
00:21:15
www.informed-scientist.org/presentation/voiding-and-bowel-problems
Education
Advocacy
2017
Polio Australia
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Polio Australia in Profile
00:05:07
www.poliohealth.org.au/polio-australia-profile-video/
Education
Clinical Practice
2017
Polio Australia
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice Workshops
00:02:59
www.poliohealth.org.au/clinical-practice-workshops-video/
Education
Late Effects of Polio / Post-Polio Syndrome
2017
Polio Australia
Dr John Tierney, Gillian Thomas, Susan Ellis
Polio Survivors Talk About the Late Effects of Polio
00:02:22
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
Education
Management
2017
Polio Australia
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Best Practice Management of the Late Effects of Polio
00:05:10
www.poliohealth.org.au/best-practice-management-video/
Education
The Future
2017
Polio Australia
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
Future Proofing Post-Polio Services
00:03:09
www.poliohealth.org.au/future-proofing-services-video/
Interviews
Late Effects of Polio / Post-Polio Syndrome
2012
NZ TV Central
Gnanaletchumy M Jegasothy (Jega)
An Interview with Jega by NZ TV Central News
00:06:49
www.poliohealth.org.au/gm-jegasothy/
Polio Today
Diagnosis
2009
Salk Institute
Dr Susan Perlman
Can Blood Tests Help Diagnose PPS?
00:01:12
www.poliohealth.org.au/dr-susan-perlman-video-09/
Polio Today
Diagnosis
2009
Salk Institute
Dr Susan Perlman
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
00:01:49
www.poliohealth.org.au/dr-susan-perlman-video-10/
Polio Today
Diagnosis
2009
Salk Institute
Dr Susan Perlman
Which Tests are Performed to Diagnose PPS?
00:04:02
www.poliohealth.org.au/dr-susan-perlman-video-08/
Polio Today
Exercise
2009
Salk Institute
Dr Susan Perlman
What Type of Exercise is Beneficial to PPS Patients?
00:01:59
www.poliohealth.org.au/dr-susan-perlman-video-13/
Polio Today
Falls
2009
Salk Institute
Dr Susan Perlman
Can the Onset of PPS be Caused by a Fall or Trauma?
00:02:18
www.poliohealth.org.au/dr-susan-perlman-video-05/
Polio Today
Late Effects of Polio / Post-Polio Syndrome
2009
Salk Institute
Dr Susan Perlman
What is the Biological Cause of PPS?
00:03:22
www.poliohealth.org.au/dr-susan-perlman-video-03/
Polio Today
Late Effects of Polio / Post-Polio Syndrome
2009
Salk Institute
Dr Susan Perlman
When Does PPS Manifest Itself? Why?
00:03:28
www.poliohealth.org.au/dr-susan-perlman-video-02/
Polio Today
Late Effects of Polio / Post-Polio Syndrome
2009
Salk Institute
Dr Susan Perlman
Who is Your Typical PPS Patient?
00:01:32
www.poliohealth.org.au/dr-susan-perlman-video-01/
Polio Today
Management
2009
Salk Institute
Dr Susan Perlman
What are the Recommendations to Effectively Manage PPS?
00:02:37
www.poliohealth.org.au/dr-susan-perlman-video-12/
Polio Today
Medical Practitioners / Therapists
2009
Salk Institute
Dr Susan Perlman
What Type of Physician Can Best Diagnose PPS?
00:01:28
www.poliohealth.org.au/dr-susan-perlman-video-07/
Polio Today
Medication
2009
Salk Institute
Dr Susan Perlman
Can PPS be Treated with Medication?
00:02:26
www.poliohealth.org.au/dr-susan-perlman-video-14/
Polio Today
Motor Neuron
2009
Salk Institute
Dr Susan Perlman
Can Lifestyle Exacerbate Motor Neuron Loss?
00:01:37
www.poliohealth.org.au/dr-susan-perlman-video-06/
Polio Today
Psychology
2009
Salk Institute
Dr Susan Perlman
What are the Psychological Factors Associated with PPS?
00:01:54
www.poliohealth.org.au/dr-susan-perlman-video-04/
Polio Today
Self-Assessment
2009
Salk Institute
Dr Susan Perlman
What are Some Self-Assessment Tests for PPS?
00:02:41
www.poliohealth.org.au/dr-susan-perlman-video-11/
Polio Today
Treatment
2009
Salk Institute
Dr Susan Perlman
Are There any New PPS Treatments on the Horizon?
00:02:24
www.poliohealth.org.au/dr-susan-perlman-video-15/
PPS: Shades of Grey
Clinical Structures
2008
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
00:21:02
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
PPS: Shades of Grey
Diagnosis
2008
Polio Network Victoria
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
00:06:01
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
PPS: Shades of Grey
Late Effects of Polio / Post-Polio Syndrome
2008
Polio Network Victoria
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
The Big Picture
00:35:54
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
PPS: Shades of Grey
Management
2008
Polio Network Victoria
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Managing Symptoms
00:56:12
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
PPS: Shades of Grey
Medical Practitioners / Therapists
2008
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Therapists
00:07:47
www.poliohealth.org.au/pps-shades-of-grey-therapists/
PPS: Shades of Grey
Medical Practitioners / Therapists
2008
Polio Network Victoria
Mary-ann Liethof
About the Participants
00:05:23
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
PPS: Shades of Grey
Non-Clinical Services
2008
Polio Network Victoria
Joan L Headley, Richard Daggett
Information and Non-Clinical Services
00:08:48
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
PPS: Shades of Grey
Research
2008
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
00:25:05
www.poliohealth.org.au/pps-shades-of-grey-research/
PPS: Shades of Grey
The Future
2008
Polio Network Victoria
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future of Polio Services
00:16:27
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
PPS: The Australian Experience
Late Effects of Polio / Post-Polio Syndrome
2005
Polio Network Victoria
Dr Richard L Bruno
Dr Rchard Bruno's 10 Commandments
00:06:59
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
PPS: The Australian Experience
Late Effects of Polio / Post-Polio Syndrome
2005
Polio Network Victoria
Dr Stephen de Graaff
Dr Stephen de Graaff Talks About Post-Polio Syndrome
00:14:25
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
PPS: The Australian Experience
Late Effects of Polio / Post-Polio Syndrome
2005
Polio Network Victoria
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Introduction
00:06:10
www.poliohealth.org.au/pps-the-australian-experience-introduction/
PPS: The Australian Experience
Medical Practitioners / Therapists
2005
Polio Network Victoria
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners
00:04:13
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
PPS: The Australian Experience
Occupational Therapy
2005
Polio Network Victoria
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
00:04:16
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
PPS: The Australian Experience
Orthotics
2005
Polio Network Victoria
Darren Pereira with Karim Degal
Orthotics
00:03:24
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
PPS: The Australian Experience
Physiotherapy
2005
Polio Network Victoria
Cathy White with Tricia Malowney
Physiotherapy
00:06:31
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
PPS: The Australian Experience
Resources
2005
Polio Network Victoria
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Strategies and Resources That Can Help You
00:04:10
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
PPS: The Australian Experience
Respiratory
2005
Polio Network Victoria
Anne Duncan with Mary Reid
Respiratory Help
00:04:47
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
PPS: The Australian Experience
Speech Therapy
2005
Polio Network Victoria
Sue Wilson with Beth Clisby
Speech Therapy
00:04:54
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
St Louis Conference
Advocacy
2014
Post-Polio Health International
William G Stothers
Self-Advocacy and Community Advocacy
00:19:19
www.poliohealth.org.au/william-stothers/
St Louis Conference
Ageing
2014
Post-Polio Health International
Audrey J King
Growing Older with Grace
00:15:08
www.poliohealth.org.au/audrey-king/
St Louis Conference
Anaesthesia
2014
Post-Polio Health International
Dr Selma Calmes
Polio and Anesthesia
00:29:46
www.poliohealth.org.au/selma-calmes/
St Louis Conference
Evaluation
2014
Post-Polio Health International
Dr Frederick M Maynard
Components of a Post-Polio Evaluation
00:35:59
www.poliohealth.org.au/fred-maynard/
St Louis Conference
Management
2014
Post-Polio Health International
Dr Carol Vandenakker-Albanese
Components of Comprehensive Post-Polio Management
00:28:13
www.poliohealth.org.au/carol-vandenakker-albanese/
St Louis Conference
Personal Philosophy
2014
Post-Polio Health International
Cyndi Jones
Spirituality in Disability
00:20:17
www.poliohealth.org.au/cyndi-jones/
St Louis Conference
Personal Philosophy
2014
Post-Polio Health International
Dr Lawrence C Becker
Developing a Personal Philosophy about Disability
00:16:35
www.poliohealth.org.au/larry-becker/
St Louis Conference
Polio Virus
2014
Post-Polio Health International
Dr Antonio Toniolo
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
00:10:53
www.poliohealth.org.au/antonio-toniolo/
St Louis Conference
Posture
2014
Post-Polio Health International
Dr Holly H Wise
The Importance of Posture
00:16:49
www.poliohealth.org.au/holly-wise/
St Louis Conference
Psychology
2014
Post-Polio Health International
Dr Rhoda Olkin
Disability Affirmative Therapy
00:22:47
www.poliohealth.org.au/rhoda-olkin/
St Louis Conference
Relationships
2014
Post-Polio Health International
Stephanie T Machell
Relationships
00:14:18
www.poliohealth.org.au/stephanie-machell/
St Louis Conference
Respiratory
2014
Post-Polio Health International
Dr John R Bach
Ways to Avoid Respiratory Complications of Postpoliomyelitis
00:27:41
www.poliohealth.org.au/john-bach/
St Louis Conference
Sleep
2014
Post-Polio Health International
Dr William M DeMayo
Sleep Hygiene
00:28:04
www.poliohealth.org.au/william-demayo/
Support Group Presentations
Late Effects of Polio / Post-Polio Syndrome
2012
Polio NSW
Dr Peter Nolan
PPS: An Orphan Disease
01:06:10
www.poliohealth.org.au/dr-peter-nolan/
Support Group Presentations
Respiratory
2012
Polio NSW
Dr Peter Nolan
Cough, Spit and Breathlessness
01:07:24
www.poliohealth.org.au/dr-peter-nolan/
Support Group Presentations
Sleep
2013
Polio NZ
Dr Andrew Veale
Better Sleep
01:31:51
www.poliohealth.org.au/dr-andrew-veale/
Sydney Conference
Conference Summary
2016
Polio Australia
Mary-ann Liethof
Post-Polio Conference - Sydney 2016
00:01:56
www.poliohealth.org.au/2016-conference-overview-video/
Sydney Conference
Orthotics
2016
Post-Polio Health International
Darren Pereira
Orthotic Needs of Younger Polio Survivors
00:23:37
www.poliohealth.org.au/darren-pereira-orthotic-needs/
Sydney Conference
Pain
2016
Post-Polio Health International
Dr Stephen de Graaff
Making Sense of Pain in the Polio Survivor
00:28:31
www.poliohealth.org.au/steve-de-graaff-pain/
Sydney Conference
Physiotherapy
2016
Post-Polio Health International
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Master Class in Physiotherapy Assessments and Exercise Therapy
01:50:17
www.poliohealth.org.au/physiotherapy-master-class/
Sydney Conference
Physiotherapy
2016
Post-Polio Health International
Merete Bertelsen
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
00:26:36
www.poliohealth.org.au/merete-bertelsen/
Sydney Conference
Polio Virus
2016
Post-Polio Health International
Dr Antonio Toniolo
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
00:33:24
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
Sydney Conference
Psychology
2016
Post-Polio Health International
Stephanie T Machell
Polio and PPS: Changing Identities
00:19:01
www.poliohealth.org.au/stephanie-machell-changing-identities/
Sydney Conference
Research
2016
Post-Polio Health International
Joan L Headley
Post-Polio Research: Why and What?
00:23:14
www.poliohealth.org.au/joan-headley/
Sydney Conference
Surgery
2016
Post-Polio Health International
Dr Stephen de Graaff
Prehabilitation: Preparing for Surgery
00:17:43
www.poliohealth.org.au/steve-de-graaff-surgery/
Sydney Conference
Treatment
2016
Post-Polio Health International
Prof Frans Nollet
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
00:19:47
www.poliohealth.org.au/frans-nollet/
Sydney Conference
Ventilation
2016
Post-Polio Health International
Anne Duncan
Finding the Right Mask
00:15:01
www.poliohealth.org.au/anne-duncan-mask/
Sydney Conference
Ventilation
2016
Post-Polio Health International
Anne Duncan
Ventilation Advancements for Polio Patients Over the Decades
00:20:33
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
Year
Category
Series
Publisher
Presenter
Presentation Title
Length (h:m:s)
Video Link
2017
Advocacy
Education
Polio Australia
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Polio Australia in Profile
00:05:07
www.poliohealth.org.au/polio-australia-profile-video/
2017
Clinical Practice
Education
Polio Australia
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice Workshops
00:02:59
www.poliohealth.org.au/clinical-practice-workshops-video/
2017
Late Effects of Polio / Post-Polio Syndrome
Education
Polio Australia
Dr John Tierney, Gillian Thomas, Susan Ellis
Polio Survivors Talk About the Late Effects of Polio
00:02:22
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
2017
Management
Education
Polio Australia
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Best Practice Management of the Late Effects of Polio
00:05:10
www.poliohealth.org.au/best-practice-management-video/
2017
The Future
Education
Polio Australia
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
Future Proofing Post-Polio Services
00:03:09
www.poliohealth.org.au/future-proofing-services-video/
2016
Conference Summary
Sydney Conference
Polio Australia
Mary-ann Liethof
Post-Polio Conference - Sydney 2016
00:01:56
www.poliohealth.org.au/2016-conference-overview-video/
2016
Orthotics
Sydney Conference
Post-Polio Health International
Darren Pereira
Orthotic Needs of Younger Polio Survivors
00:23:37
www.poliohealth.org.au/darren-pereira-orthotic-needs/
2016
Pain
Sydney Conference
Post-Polio Health International
Dr Stephen de Graaff
Making Sense of Pain in the Polio Survivor
00:28:31
www.poliohealth.org.au/steve-de-graaff-pain/
2016
Physiotherapy
Sydney Conference
Post-Polio Health International
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Master Class in Physiotherapy Assessments and Exercise Therapy
01:50:17
www.poliohealth.org.au/physiotherapy-master-class/
2016
Physiotherapy
Sydney Conference
Post-Polio Health International
Merete Bertelsen
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
00:26:36
www.poliohealth.org.au/merete-bertelsen/
2016
Polio Virus
Sydney Conference
Post-Polio Health International
Dr Antonio Toniolo
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
00:33:24
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
2016
Psychology
Sydney Conference
Post-Polio Health International
Stephanie T Machell
Polio and PPS: Changing Identities
00:19:01
www.poliohealth.org.au/stephanie-machell-changing-identities/
2016
Research
Sydney Conference
Post-Polio Health International
Joan L Headley
Post-Polio Research: Why and What?
00:23:14
www.poliohealth.org.au/joan-headley/
2016
Surgery
Sydney Conference
Post-Polio Health International
Dr Stephen de Graaff
Prehabilitation: Preparing for Surgery
00:17:43
www.poliohealth.org.au/steve-de-graaff-surgery/
2016
Treatment
Sydney Conference
Post-Polio Health International
Prof Frans Nollet
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
00:19:47
www.poliohealth.org.au/frans-nollet/
2016
Ventilation
Sydney Conference
Post-Polio Health International
Anne Duncan
Finding the Right Mask
00:15:01
www.poliohealth.org.au/anne-duncan-mask/
2016
Ventilation
Sydney Conference
Post-Polio Health International
Anne Duncan
Ventilation Advancements for Polio Patients Over the Decades
00:20:33
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
2014
Advocacy
St Louis Conference
Post-Polio Health International
William G Stothers
Self-Advocacy and Community Advocacy
00:19:19
www.poliohealth.org.au/william-stothers/
2014
Ageing
Amsterdam Conference
European Polio Union
Dr Jan Lexell
Aging and Muscle Function Including Sarcopenia
00:19:58
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
2014
Ageing
St Louis Conference
Post-Polio Health International
Audrey J King
Growing Older with Grace
00:15:08
www.poliohealth.org.au/audrey-king/
2014
Anaesthesia
Amsterdam Conference
European Polio Union
Dr Lise Kay
Anesthesiology: A Risk in PPS?
00:25:44
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
2014
Anaesthesia
St Louis Conference
Post-Polio Health International
Dr Selma Calmes
Polio and Anesthesia
00:29:46
www.poliohealth.org.au/selma-calmes/
2014
Cardiorespiratory
Amsterdam Conference
European Polio Union
Eric Voorn
Cardiorespiratory Exercise
00:12:35
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
2014
Conference Summary
Amsterdam Conference
European Polio Union
Kristian Borg, John McFarlane
Summary of Main Conference Results
00:07:56
www.informed-scientist.org/presentation/summary-of-main-conference-results
2014
Evaluation
St Louis Conference
Post-Polio Health International
Dr Frederick M Maynard
Components of a Post-Polio Evaluation
00:35:59
www.poliohealth.org.au/fred-maynard/
2014
Exercise
Amsterdam Conference
European Polio Union
Dr Deirdre Murray
Exercise – From Theory to Practice
00:10:51
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
2014
Exercise
Amsterdam Conference
European Polio Union
Dr Deirdre Murray
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
00:13:14
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
2014
Exercise
Amsterdam Conference
European Polio Union
Fieke Koopman
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
00:11:33
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
2014
Management
St Louis Conference
Post-Polio Health International
Dr Carol Vandenakker-Albanese
Components of Comprehensive Post-Polio Management
00:28:13
www.poliohealth.org.au/carol-vandenakker-albanese/
2014
Medication
Amsterdam Conference
European Polio Union
Dr Lise Kay
Medication for Co-Morbidity
00:13:59
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
2014
Osteoporosis
Amsterdam Conference
European Polio Union
Prof Helena Burger
Osteoporosis
00:17:33
www.informed-scientist.org/presentation/osteoporosis
2014
Pain
Amsterdam Conference
European Polio Union
Dr Vincent Tiffreau
Managing Pain in Polio
00:24:15
www.informed-scientist.org/presentation/managing-pain-in-polio
2014
Personal Philosophy
St Louis Conference
Post-Polio Health International
Cyndi Jones
Spirituality in Disability
00:20:17
www.poliohealth.org.au/cyndi-jones/
2014
Personal Philosophy
St Louis Conference
Post-Polio Health International
Dr Lawrence C Becker
Developing a Personal Philosophy about Disability
00:16:35
www.poliohealth.org.au/larry-becker/
2014
Physical Activity
Amsterdam Conference
European Polio Union
Cecilia Winberg
Physical Activity in Persons with Late Effects of Polio
00:10:28
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
2014
Physiotherapy
Amsterdam Conference
European Polio Union
Merete Bertelsen
Physiotherapy and Occupational Therapy
00:56:35
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
2014
Polio Virus
St Louis Conference
Post-Polio Health International
Dr Antonio Toniolo
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
00:10:53
www.poliohealth.org.au/antonio-toniolo/
2014
Post-Polio Clinic
Amsterdam Conference
European Polio Union
Merete Bertelsen
PTU’s Rehabilitation Centre
00:26:09
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
2014
Posture
St Louis Conference
Post-Polio Health International
Dr Holly H Wise
The Importance of Posture
00:16:49
www.poliohealth.org.au/holly-wise/
2014
Psychology
St Louis Conference
Post-Polio Health International
Dr Rhoda Olkin
Disability Affirmative Therapy
00:22:47
www.poliohealth.org.au/rhoda-olkin/
2014
Relationships
St Louis Conference
Post-Polio Health International
Stephanie T Machell
Relationships
00:14:18
www.poliohealth.org.au/stephanie-machell/
2014
Respiratory
St Louis Conference
Post-Polio Health International
Dr John R Bach
Ways to Avoid Respiratory Complications of Postpoliomyelitis
00:27:41
www.poliohealth.org.au/john-bach/
2014
Restless Legs
Amsterdam Conference
European Polio Union
E Portell
Restless Legs Syndrome in Patients with Poliomyelitis
00:11:29
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
2014
Sleep
St Louis Conference
Post-Polio Health International
Dr William M DeMayo
Sleep Hygiene
00:28:04
www.poliohealth.org.au/william-demayo/
2014
Surgery
Amsterdam Conference
European Polio Union
Dr Jagdish Patwa
Orthopedic Surgery in Young Polio Survivors
00:27:53
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
2014
Surgery
Amsterdam Conference
European Polio Union
Matthias Schafroth
Orthopedic Surgery in Post-Polio Syndrome
00:26:13
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
2014
Survey
Amsterdam Conference
European Polio Union
Lillian Festvaag
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
00:16:43
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
2014
The Future
Amsterdam Conference
European Polio Union
Dr Jan Lexell
Future Outlooks for the Management of Polio Survivors
00:15:21
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
2014
Treatment
Amsterdam Conference
European Polio Union
Dr Kristian Borg
Treatment of Young Polio Survivors In and Outside Europe
00:09:50
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
2014
Treatment
Amsterdam Conference
European Polio Union
Dr Peter Arlien Soborg
IVIG Treatment in Post-Polio Patients in Denmark
00:09:02
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
2014
Treatment
Amsterdam Conference
European Polio Union
Prof Frans Nollet
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
00:11:44
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
2014
Ventilation
Amsterdam Conference
European Polio Union
Dr Michael Gaytant
Ventilatory Support in Patients with Post-Polio Syndrome
00:19:00
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
2014
Walking
Amsterdam Conference
European Polio Union
Christina Brogardh
How to Assess Walking in Persons with Late Effects of Polio
00:15:26
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
2013
Sleep
Support Group Presentations
Polio NZ
Dr Andrew Veale
Better Sleep
01:31:51
www.poliohealth.org.au/dr-andrew-veale/
2012
Late Effects of Polio / Post-Polio Syndrome
Interviews
NZ TV Central
Gnanaletchumy M Jegasothy (Jega)
An Interview with Jega by NZ TV Central News
00:06:49
www.poliohealth.org.au/gm-jegasothy/
2012
Late Effects of Polio / Post-Polio Syndrome
Support Group Presentations
Polio NSW
Dr Peter Nolan
PPS: An Orphan Disease
01:06:10
www.poliohealth.org.au/dr-peter-nolan/
2012
Respiratory
Support Group Presentations
Polio NSW
Dr Peter Nolan
Cough, Spit and Breathlessness
01:07:24
www.poliohealth.org.au/dr-peter-nolan/
2011
Anaesthesia
Copenhagen Conference
European Polio Union
Dr Selma Calmes
Anesthesia for Post-Polio Patients
00:25:26
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
2011
Comorbidity
Copenhagen Conference
European Polio Union
Dr Irene Tersteeg
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
00:16:10
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
2011
Falls
Copenhagen Conference
European Polio Union
Dr Alice Bickerstaffe
Falls in Polio Survivors
00:19:59
www.informed-scientist.org/presentation/falls-among-polio-survivors
2011
Orthotics
Copenhagen Conference
European Polio Union
Dr Barbara Bocker
Latest News in Orthotics for Polio Survivors
00:19:37
www.informed-scientist.org/presentation/orthosis-management
2011
Orthotics
Copenhagen Conference
European Polio Union
Kees Noppe
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
00:40:53
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
2011
Pain
Copenhagen Conference
European Polio Union
Dr Katharina Stibrant Sunnerhagen
Pain in Polio Survivors
00:22:17
www.informed-scientist.org/presentation/pain-in-polio-survivors
2011
Psychology
Copenhagen Conference
European Polio Union
Dr Alain Yelnik
The Psychological Aspects of Polio Survivors Through Their Life Experience
00:20:56
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
2011
Respiratory
Copenhagen Conference
European Polio Union
Dr Michael Laub
Respiration and Sleep
00:20:23
www.informed-scientist.org/presentation/respiration-and-sleep
2011
Self-Management
Copenhagen Conference
European Polio Union
Mary-ann Liethof
Australia's Polio Health and Wellness Retreat
00:15:21
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
2011
Voiding
Copenhagen Conference
European Polio Union
Dr Lise Kay
Voiding and Bowel Problems
00:21:15
www.informed-scientist.org/presentation/voiding-and-bowel-problems
2009
Diagnosis
Polio Today
Salk Institute
Dr Susan Perlman
Can Blood Tests Help Diagnose PPS?
00:01:12
www.poliohealth.org.au/dr-susan-perlman-video-09/
2009
Diagnosis
Polio Today
Salk Institute
Dr Susan Perlman
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
00:01:49
www.poliohealth.org.au/dr-susan-perlman-video-10/
2009
Diagnosis
Polio Today
Salk Institute
Dr Susan Perlman
Which Tests are Performed to Diagnose PPS?
00:04:02
www.poliohealth.org.au/dr-susan-perlman-video-08/
2009
Exercise
Polio Today
Salk Institute
Dr Susan Perlman
What Type of Exercise is Beneficial to PPS Patients?
00:01:59
www.poliohealth.org.au/dr-susan-perlman-video-13/
2009
Falls
Polio Today
Salk Institute
Dr Susan Perlman
Can the Onset of PPS be Caused by a Fall or Trauma?
00:02:18
www.poliohealth.org.au/dr-susan-perlman-video-05/
2009
Late Effects of Polio / Post-Polio Syndrome
Polio Today
Salk Institute
Dr Susan Perlman
What is the Biological Cause of PPS?
00:03:22
www.poliohealth.org.au/dr-susan-perlman-video-03/
2009
Late Effects of Polio / Post-Polio Syndrome
Polio Today
Salk Institute
Dr Susan Perlman
When Does PPS Manifest Itself? Why?
00:03:28
www.poliohealth.org.au/dr-susan-perlman-video-02/
2009
Late Effects of Polio / Post-Polio Syndrome
Polio Today
Salk Institute
Dr Susan Perlman
Who is Your Typical PPS Patient?
00:01:32
www.poliohealth.org.au/dr-susan-perlman-video-01/
2009
Management
Polio Today
Salk Institute
Dr Susan Perlman
What are the Recommendations to Effectively Manage PPS?
00:02:37
www.poliohealth.org.au/dr-susan-perlman-video-12/
2009
Medical Practitioners / Therapists
Polio Today
Salk Institute
Dr Susan Perlman
What Type of Physician Can Best Diagnose PPS?
00:01:28
www.poliohealth.org.au/dr-susan-perlman-video-07/
2009
Medication
Polio Today
Salk Institute
Dr Susan Perlman
Can PPS be Treated with Medication?
00:02:26
www.poliohealth.org.au/dr-susan-perlman-video-14/
2009
Motor Neuron
Polio Today
Salk Institute
Dr Susan Perlman
Can Lifestyle Exacerbate Motor Neuron Loss?
00:01:37
www.poliohealth.org.au/dr-susan-perlman-video-06/
2009
Psychology
Polio Today
Salk Institute
Dr Susan Perlman
What are the Psychological Factors Associated with PPS?
00:01:54
www.poliohealth.org.au/dr-susan-perlman-video-04/
2009
Self-Assessment
Polio Today
Salk Institute
Dr Susan Perlman
What are Some Self-Assessment Tests for PPS?
00:02:41
www.poliohealth.org.au/dr-susan-perlman-video-11/
2009
Treatment
Polio Today
Salk Institute
Dr Susan Perlman
Are There any New PPS Treatments on the Horizon?
00:02:24
www.poliohealth.org.au/dr-susan-perlman-video-15/
2008
Clinical Structures
PPS: Shades of Grey
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
00:21:02
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
2008
Diagnosis
PPS: Shades of Grey
Polio Network Victoria
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
00:06:01
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
2008
Late Effects of Polio / Post-Polio Syndrome
PPS: Shades of Grey
Polio Network Victoria
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
The Big Picture
00:35:54
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
2008
Management
PPS: Shades of Grey
Polio Network Victoria
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Managing Symptoms
00:56:12
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
2008
Medical Practitioners / Therapists
PPS: Shades of Grey
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Therapists
00:07:47
www.poliohealth.org.au/pps-shades-of-grey-therapists/
2008
Medical Practitioners / Therapists
PPS: Shades of Grey
Polio Network Victoria
Mary-ann Liethof
About the Participants
00:05:23
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
2008
Non-Clinical Services
PPS: Shades of Grey
Polio Network Victoria
Joan L Headley, Richard Daggett
Information and Non-Clinical Services
00:08:48
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
2008
Research
PPS: Shades of Grey
Polio Network Victoria
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
00:25:05
www.poliohealth.org.au/pps-shades-of-grey-research/
2008
The Future
PPS: Shades of Grey
Polio Network Victoria
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future of Polio Services
00:16:27
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
2005
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
Polio Network Victoria
Dr Richard L Bruno
Dr Rchard Bruno's 10 Commandments
00:06:59
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
2005
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
Polio Network Victoria
Dr Stephen de Graaff
Dr Stephen de Graaff Talks About Post-Polio Syndrome
00:14:25
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
2005
Late Effects of Polio / Post-Polio Syndrome
PPS: The Australian Experience
Polio Network Victoria
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Introduction
00:06:10
www.poliohealth.org.au/pps-the-australian-experience-introduction/
2005
Medical Practitioners / Therapists
PPS: The Australian Experience
Polio Network Victoria
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners
00:04:13
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
2005
Occupational Therapy
PPS: The Australian Experience
Polio Network Victoria
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
00:04:16
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
2005
Orthotics
PPS: The Australian Experience
Polio Network Victoria
Darren Pereira with Karim Degal
Orthotics
00:03:24
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
2005
Physiotherapy
PPS: The Australian Experience
Polio Network Victoria
Cathy White with Tricia Malowney
Physiotherapy
00:06:31
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
2005
Resources
PPS: The Australian Experience
Polio Network Victoria
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Strategies and Resources That Can Help You
00:04:10
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
2005
Respiratory
PPS: The Australian Experience
Polio Network Victoria
Anne Duncan with Mary Reid
Respiratory Help
00:04:47
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
2005
Speech Therapy
PPS: The Australian Experience
Polio Network Victoria
Sue Wilson with Beth Clisby
Speech Therapy
00:04:54
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
Publisher
Series
Year
Category
Presenter
Presentation Title
Length (h:m:s)
Video Link
European Polio Union
Amsterdam Conference
2014
Ageing
Dr Jan Lexell
Aging and Muscle Function Including Sarcopenia
00:19:58
www.informed-scientist.org/presentation/aging-and-muscle-function-including-sarcopenia
European Polio Union
Amsterdam Conference
2014
Anaesthesia
Dr Lise Kay
Anesthesiology: A Risk in PPS?
00:25:44
www.informed-scientist.org/presentation/anaesthesiology-a-risk-in-post-polio-syndrome
European Polio Union
Amsterdam Conference
2014
Cardiorespiratory
Eric Voorn
Cardiorespiratory Exercise
00:12:35
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-2
European Polio Union
Amsterdam Conference
2014
Conference Summary
Kristian Borg, John McFarlane
Summary of Main Conference Results
00:07:56
www.informed-scientist.org/presentation/summary-of-main-conference-results
European Polio Union
Amsterdam Conference
2014
Exercise
Dr Deirdre Murray
Exercise – From Theory to Practice
00:10:51
www.informed-scientist.org/presentation/exercise-from-theory-to-practice-1
European Polio Union
Amsterdam Conference
2014
Exercise
Dr Deirdre Murray
The Effects of a Home-Based Arm Ergometry Exercise Programme on Physical Fitness, Fatigue and Activity in Polio Survivors
00:13:14
www.informed-scientist.org/presentation/the-effects-of-a-home-based-arm-ergometry-exercise-programme-on-physical-fitness-fatigue-and-activity-in-polio-survivors-a-randomised-controlled-trial
European Polio Union
Amsterdam Conference
2014
Exercise
Fieke Koopman
Exercise Therapy and Cognitive Behavioural Therapy to Improve Fatigue in Post-Polio Syndrome
00:11:33
www.informed-scientist.org/presentation/exercise-therapy-and-cognitive-behavioural-therapy-to-improve-fatigue-in-post-polio-syndrome-preliminary-results-of-a-randomized-controlled-trial
European Polio Union
Amsterdam Conference
2014
Medication
Dr Lise Kay
Medication for Co-Morbidity
00:13:59
www.informed-scientist.org/presentation/medication-for-comorbidities-effects-in-post-polio-syndrome
European Polio Union
Amsterdam Conference
2014
Osteoporosis
Prof Helena Burger
Osteoporosis
00:17:33
www.informed-scientist.org/presentation/osteoporosis
European Polio Union
Amsterdam Conference
2014
Pain
Dr Vincent Tiffreau
Managing Pain in Polio
00:24:15
www.informed-scientist.org/presentation/managing-pain-in-polio
European Polio Union
Amsterdam Conference
2014
Physical Activity
Cecilia Winberg
Physical Activity in Persons with Late Effects of Polio
00:10:28
www.informed-scientist.org/presentation/physical-activity-in-persons-with-late-effects-of-polio-a-descriptive-study
European Polio Union
Amsterdam Conference
2014
Physiotherapy
Merete Bertelsen
Physiotherapy and Occupational Therapy
00:56:35
www.informed-scientist.org/presentation/physio-and-occupational-therapy-inspiration-across-borders
European Polio Union
Amsterdam Conference
2014
Post-Polio Clinic
Merete Bertelsen
PTU’s Rehabilitation Centre
00:26:09
www.informed-scientist.org/presentation/exercise-from-theory-to-practice
European Polio Union
Amsterdam Conference
2014
Restless Legs
E Portell
Restless Legs Syndrome in Patients with Poliomyelitis
00:11:29
www.informed-scientist.org/presentation/restless-leg-syndrome-in-poliomyelitis
European Polio Union
Amsterdam Conference
2014
Surgery
Dr Jagdish Patwa
Orthopedic Surgery in Young Polio Survivors
00:27:53
www.informed-scientist.org/presentation/orthopedic-surgery-in-young-polio-survivors
European Polio Union
Amsterdam Conference
2014
Surgery
Matthias Schafroth
Orthopedic Surgery in Post-Polio Syndrome
00:26:13
www.informed-scientist.org/presentation/orthopedic-surgery-in-post-polio-syndrome
European Polio Union
Amsterdam Conference
2014
Survey
Lillian Festvaag
National Survey on Health and Living Conditions in Norwegian Polio Survivors – A 20-Year Follow-Up
00:16:43
www.informed-scientist.org/presentation/new-20-year-follow-up-national-survey-on-polio-survivors-in-norway
European Polio Union
Amsterdam Conference
2014
The Future
Dr Jan Lexell
Future Outlooks for the Management of Polio Survivors
00:15:21
www.informed-scientist.org/presentation/future-outlooks-for-the-management-of-polio-survivors
European Polio Union
Amsterdam Conference
2014
Treatment
Dr Kristian Borg
Treatment of Young Polio Survivors In and Outside Europe
00:09:50
www.informed-scientist.org/presentation/treatment-of-young-polio-survivors-in-and-outside-europe
European Polio Union
Amsterdam Conference
2014
Treatment
Dr Peter Arlien Soborg
IVIG Treatment in Post-Polio Patients in Denmark
00:09:02
www.informed-scientist.org/presentation/ivig-treatment-in-post-polio-syndrome
European Polio Union
Amsterdam Conference
2014
Treatment
Prof Frans Nollet
Pathophysiology of Post-Polio Syndrome – New Avenues for Treatment?
00:11:44
www.informed-scientist.org/presentation/pathophysiology-of-post-polio-syndrome-new-avenues-for-treatment
European Polio Union
Amsterdam Conference
2014
Ventilation
Dr Michael Gaytant
Ventilatory Support in Patients with Post-Polio Syndrome
00:19:00
www.informed-scientist.org/presentation/ventilatory-support-in-patients-with-post-polio-syndrome
European Polio Union
Amsterdam Conference
2014
Walking
Christina Brogardh
How to Assess Walking in Persons with Late Effects of Polio
00:15:26
www.informed-scientist.org/presentation/gait-studies-in-poliomyelitis-1
European Polio Union
Copenhagen Conference
2011
Anaesthesia
Dr Selma Calmes
Anesthesia for Post-Polio Patients
00:25:26
www.informed-scientist.org/presentation/anesthesia-issues-for-polio-survivors
European Polio Union
Copenhagen Conference
2011
Comorbidity
Dr Irene Tersteeg
Impact of Comorbidity, Aging and Lifestyle - Related Factors in Polio Survivors
00:16:10
www.informed-scientist.org/presentation/impact-of-comorbidity-aging-and-lifestyle-related-factors-in-polio-survivors
European Polio Union
Copenhagen Conference
2011
Falls
Dr Alice Bickerstaffe
Falls in Polio Survivors
00:19:59
www.informed-scientist.org/presentation/falls-among-polio-survivors
European Polio Union
Copenhagen Conference
2011
Orthotics
Dr Barbara Bocker
Latest News in Orthotics for Polio Survivors
00:19:37
www.informed-scientist.org/presentation/orthosis-management
European Polio Union
Copenhagen Conference
2011
Orthotics
Kees Noppe
Designing and Manufacturing Light-Weight Full-Contact Carbon Leg Orthoses
00:40:53
www.informed-scientist.org/presentation/light-weight-full-contact-carbon-leg-orthoses
European Polio Union
Copenhagen Conference
2011
Pain
Dr Katharina Stibrant Sunnerhagen
Pain in Polio Survivors
00:22:17
www.informed-scientist.org/presentation/pain-in-polio-survivors
European Polio Union
Copenhagen Conference
2011
Psychology
Dr Alain Yelnik
The Psychological Aspects of Polio Survivors Through Their Life Experience
00:20:56
www.informed-scientist.org/presentation/psychological-aspects-of-polio-survivors-through-their-life-experience
European Polio Union
Copenhagen Conference
2011
Respiratory
Dr Michael Laub
Respiration and Sleep
00:20:23
www.informed-scientist.org/presentation/respiration-and-sleep
European Polio Union
Copenhagen Conference
2011
Self-Management
Mary-ann Liethof
Australia's Polio Health and Wellness Retreat
00:15:21
www.informed-scientist.org/presentation/australia-s-polio-health-and-wellness-retreat
European Polio Union
Copenhagen Conference
2011
Voiding
Dr Lise Kay
Voiding and Bowel Problems
00:21:15
www.informed-scientist.org/presentation/voiding-and-bowel-problems
NZ TV Central
Interviews
2012
Late Effects of Polio / Post-Polio Syndrome
Gnanaletchumy M Jegasothy (Jega)
An Interview with Jega by NZ TV Central News
00:06:49
www.poliohealth.org.au/gm-jegasothy/
Polio Australia
Education
2017
Advocacy
Mary-ann Liethof, Steve Georganas MP, Senator Rachel Siewert, Billie Thow, Suzanne Mackenzie, Karin Kolenko, Jill Pickering, Brett Howard
Polio Australia in Profile
00:05:07
www.poliohealth.org.au/polio-australia-profile-video/
Polio Australia
Education
2017
Clinical Practice
Catriona Morehouse, Ian Riach, Gillian Thomas, Sarah Collison
Clinical Practice Workshops
00:02:59
www.poliohealth.org.au/clinical-practice-workshops-video/
Polio Australia
Education
2017
Late Effects of Polio / Post-Polio Syndrome
Dr John Tierney, Gillian Thomas, Susan Ellis
Polio Survivors Talk About the Late Effects of Polio
00:02:22
www.poliohealth.org.au/polio-survivors-talk-about-leop-video/
Polio Australia
Education
2017
Management
Dr Helen Mackie, Mary-ann Liethof, Dr John Tierney, Susan Ellis, Gillian Thomas, Catriona Morehouse, Michelle Browett, Tim Nicolls
Best Practice Management of the Late Effects of Polio
00:05:10
www.poliohealth.org.au/best-practice-management-video/
Polio Australia
Education
2017
The Future
Bev Watson, Brett Howard, Susan Ellis, Mary-ann Liethof, The Hon Jane Prentice MP, Senator Rachel Siewert
Future Proofing Post-Polio Services
00:03:09
www.poliohealth.org.au/future-proofing-services-video/
Polio Australia
Sydney Conference
2016
Conference Summary
Mary-ann Liethof
Post-Polio Conference - Sydney 2016
00:01:56
www.poliohealth.org.au/2016-conference-overview-video/
Polio Network Victoria
PPS: Shades of Grey
2008
Clinical Structures
Dr Susan Perlman, Melinda Guttry, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead
Clinical Structures
00:21:02
www.poliohealth.org.au/pps-shades-of-grey-clinical-structures/
Polio Network Victoria
PPS: Shades of Grey
2008
Diagnosis
Dr Lauro S Halstead, Dr Daria Trojan, Dr William M DeMayo
Diagnosis
00:06:01
www.poliohealth.org.au/pps-shades-of-grey-diagnosis/
Polio Network Victoria
PPS: Shades of Grey
2008
Late Effects of Polio / Post-Polio Syndrome
Dr Marcia Falconer, Richard Daggett, Dr Susan Perlman, Melinda Guttry, Dr William M DeMayo, Anna Rubin, Dr Richard L Bruno
The Big Picture
00:35:54
www.poliohealth.org.au/pps-shades-of-grey-the-big-picture/
Polio Network Victoria
PPS: Shades of Grey
2008
Management
Dr Jacquelin Perry, Dr Sophia Chun, Dr Darren Rosenberg, Dr Lauro S Halstead, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr William M DeMayo
Managing Symptoms
00:56:12
www.poliohealth.org.au/pps-shades-of-grey-managing-symptoms/
Polio Network Victoria
PPS: Shades of Grey
2008
Medical Practitioners / Therapists
Dr Susan Perlman, Melinda Guttry, Dr Marcia Falconer, Dr Daria Trojan
Therapists
00:07:47
www.poliohealth.org.au/pps-shades-of-grey-therapists/
Polio Network Victoria
PPS: Shades of Grey
2008
Medical Practitioners / Therapists
Mary-ann Liethof
About the Participants
00:05:23
www.poliohealth.org.au/pps-shades-of-grey-about-the-participants/
Polio Network Victoria
PPS: Shades of Grey
2008
Non-Clinical Services
Joan L Headley, Richard Daggett
Information and Non-Clinical Services
00:08:48
www.poliohealth.org.au/pps-shades-of-grey-information-and-non-clinical-services/
Polio Network Victoria
PPS: Shades of Grey
2008
Research
Dr Susan Perlman, Melinda Guttry, Joan L Headley, Dr Jacquelin Perry, Dr Sophia Chun, Dr Lauro S Halstead, Dr Daria Trojan, Dr Darren Rosenberg
Research
00:25:05
www.poliohealth.org.au/pps-shades-of-grey-research/
Polio Network Victoria
PPS: Shades of Grey
2008
The Future
Dr Darren Rosenberg, Dr Daria Trojan, Dr Lauro S Halstead, Joan L Headley, Dr Richard L Bruno, Dr Susan Perlman, Melinda Guttry
The Future of Polio Services
00:16:27
www.poliohealth.org.au/pps-shades-of-grey-future-of-polio-services/
Polio Network Victoria
PPS: The Australian Experience
2005
Late Effects of Polio / Post-Polio Syndrome
Dr Richard L Bruno
Dr Rchard Bruno's 10 Commandments
00:06:59
www.poliohealth.org.au/pps-the-australian-experience-ten-commandments/
Polio Network Victoria
PPS: The Australian Experience
2005
Late Effects of Polio / Post-Polio Syndrome
Dr Stephen de Graaff
Dr Stephen de Graaff Talks About Post-Polio Syndrome
00:14:25
www.poliohealth.org.au/pps-the-australian-experience-dr-de-graaff/
Polio Network Victoria
PPS: The Australian Experience
2005
Late Effects of Polio / Post-Polio Syndrome
Support Group Members: Lyn Bates, Pauline Corrigan, Karin Degal, Tricia Malowney, Mary Reid
Introduction
00:06:10
www.poliohealth.org.au/pps-the-australian-experience-introduction/
Polio Network Victoria
PPS: The Australian Experience
2005
Medical Practitioners / Therapists
Dr Stephen de Graaff with Lyn Bates
Medical Practitioners
00:04:13
www.poliohealth.org.au/pps-the-australian-experience-medical-practitioners/
Polio Network Victoria
PPS: The Australian Experience
2005
Occupational Therapy
Margaret Petkoff with Pauline Corrigan
Occupational Therapy
00:04:16
www.poliohealth.org.au/pps-the-australian-experience-occupational-therapy/
Polio Network Victoria
PPS: The Australian Experience
2005
Orthotics
Darren Pereira with Karim Degal
Orthotics
00:03:24
www.poliohealth.org.au/pps-the-australian-experience-orthotics/
Polio Network Victoria
PPS: The Australian Experience
2005
Physiotherapy
Cathy White with Tricia Malowney
Physiotherapy
00:06:31
www.poliohealth.org.au/pps-the-australian-experience-physiotherapy/
Polio Network Victoria
PPS: The Australian Experience
2005
Resources
Lyn Bates, Brian Catchpole, Tricia Malowney, Pauline Corrigan, Karim Degal, Mary Reid
Strategies and Resources That Can Help You
00:04:10
www.poliohealth.org.au/pps-the-australian-experience-strategies-and-resources/
Polio Network Victoria
PPS: The Australian Experience
2005
Respiratory
Anne Duncan with Mary Reid
Respiratory Help
00:04:47
www.poliohealth.org.au/pps-the-australian-experience-respiratory-help/
Polio Network Victoria
PPS: The Australian Experience
2005
Speech Therapy
Sue Wilson with Beth Clisby
Speech Therapy
00:04:54
www.poliohealth.org.au/pps-the-australian-experience-speech-therapy/
Polio NSW
Support Group Presentations
2012
Late Effects of Polio / Post-Polio Syndrome
Dr Peter Nolan
PPS: An Orphan Disease
01:06:10
www.poliohealth.org.au/dr-peter-nolan/
Polio NSW
Support Group Presentations
2012
Respiratory
Dr Peter Nolan
Cough, Spit and Breathlessness
01:07:24
www.poliohealth.org.au/dr-peter-nolan/
Polio NZ
Support Group Presentations
2013
Sleep
Dr Andrew Veale
Better Sleep
01:31:51
www.poliohealth.org.au/dr-andrew-veale/
Post-Polio Health International
St Louis Conference
2014
Advocacy
William G Stothers
Self-Advocacy and Community Advocacy
00:19:19
www.poliohealth.org.au/william-stothers/
Post-Polio Health International
St Louis Conference
2014
Ageing
Audrey J King
Growing Older with Grace
00:15:08
www.poliohealth.org.au/audrey-king/
Post-Polio Health International
St Louis Conference
2014
Anaesthesia
Dr Selma Calmes
Polio and Anesthesia
00:29:46
www.poliohealth.org.au/selma-calmes/
Post-Polio Health International
St Louis Conference
2014
Evaluation
Dr Frederick M Maynard
Components of a Post-Polio Evaluation
00:35:59
www.poliohealth.org.au/fred-maynard/
Post-Polio Health International
St Louis Conference
2014
Management
Dr Carol Vandenakker-Albanese
Components of Comprehensive Post-Polio Management
00:28:13
www.poliohealth.org.au/carol-vandenakker-albanese/
Post-Polio Health International
St Louis Conference
2014
Personal Philosophy
Cyndi Jones
Spirituality in Disability
00:20:17
www.poliohealth.org.au/cyndi-jones/
Post-Polio Health International
St Louis Conference
2014
Personal Philosophy
Dr Lawrence C Becker
Developing a Personal Philosophy about Disability
00:16:35
www.poliohealth.org.au/larry-becker/
Post-Polio Health International
St Louis Conference
2014
Polio Virus
Dr Antonio Toniolo
Are Polioviruses Playing a Pathogenic Role in the Late Consequences of Polio?
00:10:53
www.poliohealth.org.au/antonio-toniolo/
Post-Polio Health International
St Louis Conference
2014
Posture
Dr Holly H Wise
The Importance of Posture
00:16:49
www.poliohealth.org.au/holly-wise/
Post-Polio Health International
St Louis Conference
2014
Psychology
Dr Rhoda Olkin
Disability Affirmative Therapy
00:22:47
www.poliohealth.org.au/rhoda-olkin/
Post-Polio Health International
St Louis Conference
2014
Relationships
Stephanie T Machell
Relationships
00:14:18
www.poliohealth.org.au/stephanie-machell/
Post-Polio Health International
St Louis Conference
2014
Respiratory
Dr John R Bach
Ways to Avoid Respiratory Complications of Postpoliomyelitis
00:27:41
www.poliohealth.org.au/john-bach/
Post-Polio Health International
St Louis Conference
2014
Sleep
Dr William M DeMayo
Sleep Hygiene
00:28:04
www.poliohealth.org.au/william-demayo/
Post-Polio Health International
Sydney Conference
2016
Orthotics
Darren Pereira
Orthotic Needs of Younger Polio Survivors
00:23:37
www.poliohealth.org.au/darren-pereira-orthotic-needs/
Post-Polio Health International
Sydney Conference
2016
Pain
Dr Stephen de Graaff
Making Sense of Pain in the Polio Survivor
00:28:31
www.poliohealth.org.au/steve-de-graaff-pain/
Post-Polio Health International
Sydney Conference
2016
Physiotherapy
Catriona Morehouse, Gnanaletchumy M Jegasothy (Jega), Ann Buchan, Merete Bertelsen
Master Class in Physiotherapy Assessments and Exercise Therapy
01:50:17
www.poliohealth.org.au/physiotherapy-master-class/
Post-Polio Health International
Sydney Conference
2016
Physiotherapy
Merete Bertelsen
Physiotherapy for Post-Polio Patients as Part of an Interdisciplinary Rehabilitation Program
00:26:36
www.poliohealth.org.au/merete-bertelsen/
Post-Polio Health International
Sydney Conference
2016
Polio Virus
Dr Antonio Toniolo
Post-Polio Syndrome as a Possible Viral Disease: Results from an Italian PPS Cohort
00:33:24
www.poliohealth.org.au/antonio-toniolo-pps-possible-viral-disease/
Post-Polio Health International
Sydney Conference
2016
Psychology
Stephanie T Machell
Polio and PPS: Changing Identities
00:19:01
www.poliohealth.org.au/stephanie-machell-changing-identities/
Post-Polio Health International
Sydney Conference
2016
Research
Joan L Headley
Post-Polio Research: Why and What?
00:23:14
www.poliohealth.org.au/joan-headley/
Post-Polio Health International
Sydney Conference
2016
Surgery
Dr Stephen de Graaff
Prehabilitation: Preparing for Surgery
00:17:43
www.poliohealth.org.au/steve-de-graaff-surgery/
Post-Polio Health International
Sydney Conference
2016
Treatment
Prof Frans Nollet
IvIg as a Treatment for Post-Polio Syndrome: Trial Results
00:19:47
www.poliohealth.org.au/frans-nollet/
Post-Polio Health International
Sydney Conference
2016
Ventilation
Anne Duncan
Finding the Right Mask
00:15:01
www.poliohealth.org.au/anne-duncan-mask/
Post-Polio Health International
Sydney Conference
2016
Ventilation
Anne Duncan
Ventilation Advancements for Polio Patients Over the Decades
00:20:33
www.poliohealth.org.au/anne-duncan-ventilation-advancements/
Salk Institute
Polio Today
2009
Diagnosis
Dr Susan Perlman
Can Blood Tests Help Diagnose PPS?
00:01:12
www.poliohealth.org.au/dr-susan-perlman-video-09/
Salk Institute
Polio Today
2009
Diagnosis
Dr Susan Perlman
Which Diagnostic Tests are Performed on Bulbar Polio Survivors?
00:01:49
www.poliohealth.org.au/dr-susan-perlman-video-10/
Salk Institute
Polio Today
2009
Diagnosis
Dr Susan Perlman
Which Tests are Performed to Diagnose PPS?
00:04:02
www.poliohealth.org.au/dr-susan-perlman-video-08/
Salk Institute
Polio Today
2009
Exercise
Dr Susan Perlman
What Type of Exercise is Beneficial to PPS Patients?
00:01:59
www.poliohealth.org.au/dr-susan-perlman-video-13/
Salk Institute
Polio Today
2009
Falls
Dr Susan Perlman
Can the Onset of PPS be Caused by a Fall or Trauma?
00:02:18
www.poliohealth.org.au/dr-susan-perlman-video-05/
Salk Institute
Polio Today
2009
Late Effects of Polio / Post-Polio Syndrome
Dr Susan Perlman
What is the Biological Cause of PPS?
00:03:22
www.poliohealth.org.au/dr-susan-perlman-video-03/
Salk Institute
Polio Today
2009
Late Effects of Polio / Post-Polio Syndrome
Dr Susan Perlman
When Does PPS Manifest Itself? Why?
00:03:28
www.poliohealth.org.au/dr-susan-perlman-video-02/
Salk Institute
Polio Today
2009
Late Effects of Polio / Post-Polio Syndrome
Dr Susan Perlman
Who is Your Typical PPS Patient?
00:01:32
www.poliohealth.org.au/dr-susan-perlman-video-01/
Salk Institute
Polio Today
2009
Management
Dr Susan Perlman
What are the Recommendations to Effectively Manage PPS?
00:02:37
www.poliohealth.org.au/dr-susan-perlman-video-12/
Salk Institute
Polio Today
2009
Medical Practitioners / Therapists
Dr Susan Perlman
What Type of Physician Can Best Diagnose PPS?
00:01:28
www.poliohealth.org.au/dr-susan-perlman-video-07/
Salk Institute
Polio Today
2009
Medication
Dr Susan Perlman
Can PPS be Treated with Medication?
00:02:26
www.poliohealth.org.au/dr-susan-perlman-video-14/
Salk Institute
Polio Today
2009
Motor Neuron
Dr Susan Perlman
Can Lifestyle Exacerbate Motor Neuron Loss?
00:01:37
www.poliohealth.org.au/dr-susan-perlman-video-06/
Salk Institute
Polio Today
2009
Psychology
Dr Susan Perlman
What are the Psychological Factors Associated with PPS?
00:01:54
www.poliohealth.org.au/dr-susan-perlman-video-04/
Salk Institute
Polio Today
2009
Self-Assessment
Dr Susan Perlman
What are Some Self-Assessment Tests for PPS?
00:02:41
www.poliohealth.org.au/dr-susan-perlman-video-11/
Salk Institute
Polio Today
2009
Treatment
Dr Susan Perlman
Are There any New PPS Treatments on the Horizon?
00:02:24
www.poliohealth.org.au/dr-susan-perlman-video-15/