{"id":12920,"date":"2015-03-28T10:54:32","date_gmt":"2015-03-27T23:54:32","guid":{"rendered":"http:\/\/www.poliohealth.org.au\/?page_id=12920"},"modified":"2017-09-15T14:59:26","modified_gmt":"2017-09-15T04:59:26","slug":"research-sorted-by-title","status":"publish","type":"page","link":"https:\/\/www.poliohealth.org.au\/research-sorted-by-title\/","title":{"rendered":"Post-Polio Research Papers – Sorted by Title"},"content":{"rendered":"
Title: <\/span> Life satisfaction in persons with late effects of polio. Applied Research in Quality of Life<\/span> Abstract: <\/span>PURPOSE: Conclusions: <\/span>Perceived participation and problems with participation in life situations are determinants of life satisfaction in persons with late effects of polio. This implies that addressing participation and problems with participation in the rehabilitation of persons with late effects of polio may lead to an enhanced life satisfaction.<\/p>\n Outcome of Research: <\/span>More research required<\/p>\n Comments<\/span> (if any)<\/span>:<\/span> <\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> Click here to view Abstract<\/a><\/p>\n Title: <\/span>1246: Missed chronic respiratory failure in a post-polio syndrome patient<\/span> Abstract: <\/span>This is a brief Case Report which does not have an abstract. This is an extract: Conclusions: <\/span><\/p>\n Outcome of Research: <\/span>Not applicable<\/p>\n Comments<\/span> (if any)<\/span>:<\/span> Paid subscription required to view or download full text.<\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> Click here for preview<\/a><\/p>\n Title: <\/span>A 5-year longitudinal study of fatigue in patients with late-onset sequelae of poliomyelitis<\/span> Abstract: <\/span>OBJECTIVES: To study the severity and 5-year course of fatigue in patients with late-onset sequelae of poliomyelitis (LOSP) and to identify physical and psychosocial determinants of fatigue. Conclusions: <\/span>Fatigue is severe and persistent in patients with LOSP due to physical and psychologic factors, which has implications for counseling and treatment. In addition to the commonly applied interventions targeting physical aspects, psychologic interventions are a potential area for reducing fatigue.<\/p>\n Outcome of Research: <\/span>Effective<\/p>\n Comments<\/span> (if any)<\/span>:<\/span> The full text of this paper has been generously made available by the publisher.<\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> Click here to download<\/a><\/p>\n Title: <\/span>A Brief Questionnaire to Assess Post-Exertional Malaise<\/span> Abstract: <\/span>Post-exertional malaise (PEM) is a key symptom of myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Currently, five PEM-items from the DePaul Symptom Questionnaire (DSQ) were recommended as a first step in measuring this symptom for patients with ME and CFS by the National Institutes of Health\/Centers for Disease Control and Prevention (NIH\/CDC) Common Data Elements’ (CDE) working group. The second step in this process, as recommended by the NIH\/CDC CDE working group, involves assembling information from various sources to confirm the presence of PEM. There have not been any efforts, to date, to standardize this second-step process in the assessment of PEM. The current study examined whether five supplementary items on the DSQ could be used to operationalize the second step of the recommendations made by the NIH\/CDC CDE working group. The five supplementary DSQ PEM duration items correctly categorized patients with ME or CFS 81.7% of the time, while incorrectly categorizing multiple sclerosis (MS) and post-polio syndrome (PPS) as ME or CFS only 16.6% of the time. The findings suggested that a PEM second-step process could be operationalized using supplementary DSQ items.<\/p>\n Conclusions: <\/span><\/p>\n Outcome of Research: <\/span>More research required<\/p>\n Comments<\/span> (if any)<\/span>:<\/span> <\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> Click here to view full text or to download<\/a><\/p>\n Title: <\/span>A case of post-poliomyelitis muscular atrophy with cranial nerve signs and widespread muscular atrophy of extremities <\/span> Abstract: <\/span>Here we report a case of a 56-year-old male with post-poliomyelitis muscular atrophy (PPMA), who presented with cranial nerve signs and widespread atrophy of the extremities. He had suffered from poliomyelitis at the age of 2 years. After recovery from the acute stage, the paralysis remained in his left arm. He noticed muscle weakness of the right upper and lower extremities at the age of 45 years and the muscle atrophy progressed to his arms, hip and thigh at the age of 55 years. Neurological examination revealed muscle atrophy of the neck and disturbance of left V, VIII, IX, X and bilateral XI cranial nerves. We diagnosed this case as PPMA from his history and electromyographic and muscle biopsy findings which suggested chronic denervation. Among the 21 PPMA cases in the past in which the acute poliomyelitis had resulted in paralysis of the only one limb, ours was the only case that had muscle atrophy of all the limbs. Cranial nerve involvement is known to occur in acute poliomyelitis; therefore, there is a possibility that the involvement of the cranial nerves in our case might be a delayed progressive symptoms.<\/p>\n Conclusions: <\/span><\/p>\n Outcome of Research: <\/span><\/p>\n Comments<\/span> (if any)<\/span>:<\/span> <\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> <\/a><\/p>\n Title: <\/span>A comparison of 4 questionnaires to measure fatigue in postpoliomyelitis syndrome<\/span> Abstract: <\/span>OBJECTIVE: To assess the comparability and reproducibility of 4 questionnaires used to measure fatigue in postpoliomyelitis syndrome (PPS). Conclusions: <\/span>Although the questionnaires measure the same fatigue construct in PPS, the results are not interchangeable because the ranges of measurement differ. The NHP energy category, in particular, appeared to have a high detection threshold. The moderate reproducibility of the questionnaires indicates a lack of precision, especially when applied at the individual patient level.<\/p>\n Outcome of Research: <\/span>Not applicable<\/p>\n Comments<\/span> (if any)<\/span>:<\/span> The full text of this paper has been generously made available by the publisher.<\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> Click here to view full text or to download<\/a><\/p>\n Title: <\/span>A comparison of symptoms between Swedish and American post-polio individuals and assessment of lower-limb strength- a four year cohort study. <\/span> Abstract: <\/span>A cohort study with initial and 4-year follow-up evaluations was performed in 78 post-polio volunteers aged 34-65 years at the time of enrolment in the study, which was made to compare post-polio individuals living in Sweden and the United States, to determine whether lower limb musculature becomes weaker over time, and to determine whether individuals with complaints of post-polio syndrome, new weakness, fatigue, walking or stair climbing difficulty were weaker or lost more strength over a 4-year interval than those individuals without such complaints. Dynametrically-measured knee extensor and flexor strength and questionnaire data were obtained initially and 4 years later. The two cohorts were fairly similar, though they differed in weight gain. The Americans gained significantly (p < 0.05) more weight than the Swedish subjects. Both groups lost significant (p < 0.05) knee extensor strength (approximately 8%), but the loss was not significantly (p < 0.05) different between the groups. Knee flexor strength did not change significantly (p < 0.05) over time. Subjects acknowledging new strength loss were not significantly (p < 0.05) weaker than those denying strength loss; however, they lost significantly (p < 0.05) more isometric knee extensor strength than the other individuals. Subjects acknowledging new fatigue, walking or stair climbing difficulty were significantly (p < 0.05) weaker in both muscle groups than those without such complaints. Subjects acknowledging post-polio syndrome were significantly (p < 0.05) weaker than those denying this symptom, but the amount of loss of strength over time was not significantly (p < 0.05) different. We conclude that the two cohorts were quite similar. Knee extensor strength decreased during the study interval. Individuals acknowledging post-polio syndrome had weaker knee extensor musculature. Subjects with new fatigue, walking difficulty, or stair climbing difficulty were weaker in both the knee extensors and the knee flexors than the other subjects. Subjects reporting new muscle weakness also had a greater decline in isometric knee extensor strength during the study interval than those without such complaint.<\/p>\n Conclusions: <\/span>Knee extensor strength decreased during the study interval. Individuals acknowledging post-polio syndrome had weaker knee extensor musculature. Subjects with new fatigue, walking difficulty, or stair climbing difficulty were weaker in both the knee extensors and the knee flexors than the other subjects. Subjects reporting new muscle weakness also had a greater decline in isometric knee extensor strength during the study interval than those without such complaint.<\/p>\n Outcome of Research: <\/span>Effective<\/p>\n Comments<\/span> (if any)<\/span>:<\/span> Paid subscription required to view or download full text.<\/p>\n Link to Full Paper<\/span> (if available)<\/span>:<\/span> Click here to view Abstract<\/a><\/p>\n Title: <\/span>A cross-sectional survey of healthcare workers on the knowledge and attitudes towards polio vaccination in Pakistan<\/span> Abstract: <\/span>INTRODUCTION: Pakistan accounts for 85.2% of the total polio cases reported worldwide. Healthcare workers (HCWs) are an integral part of immunization campaigns and source of education for the general public. This study aimed to assess the knowledge and attitudes towards polio vaccination among HCWs providing immunisation and education to general public in Quetta and Peshawar divisions of Pakistan. Conclusions: <\/span>Participants in this study had good knowledge and positive attitudes towards polio vaccination. Although the data are indicative of gaps in the knowledge of HCWs, the findings may not be generalized to other hospitals in Pakistan.<\/p>\n
\nAuthor: <\/span>Lund ML, Lexell J.
\nAffiliation: <\/span>Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, Umeå, Sweden. maria.larsson.lund@occupther.umu.se
\nJournal: <\/span>Disability and Rehabilitation
\nCitation: <\/span>2009;31(19):1592-7.
\nPublication Year and Month: <\/span>2009 09<\/p>\n
\r\nTo assess the relationship between participation and problems with participation in life situations, and life satisfaction in persons with late effects of polio.
\r\n
\r\nMETHODS:
\r\nOne hundred fifty-eight persons with late effects of polio responded to a postal questionnaire including the Swedish versions of the Impact on Participation and Autonomy Questionnaire (IPA-S) and Life Satisfaction Questionnaire (LiSat-11).
\r\n
\r\nRESULTS:
\r\nThe persons' perceived participation in the five domains of participation in the IPA-S was significantly correlated with their satisfaction with life as a whole and with most of the 10 domains of life satisfaction. Significant differences in satisfaction with life as a whole and with eight of the 10 domains in LiSat-11 were found between groups of increasing severe problems with participation. Greater number of reports of severe problems with participation corresponded with gradually decreased satisfaction with life as a whole and with satisfaction in the eight domains in LiSat-11.<\/p>\n
\nCategory: <\/span>Respiratory Complications and Management<\/p>\n
\nAuthor: <\/span>Aljasmi M, Agarwal K, Uppalapati S, Bazan L
\nAffiliation: <\/span>Not stated
\nJournal: <\/span>Critical Care Medicine
\nCitation: <\/span>Crit Care Med. 2015 Dec;43(12 Suppl 1):313
\nPublication Year and Month: <\/span>2015 12<\/p>\n
\n
\nINTRODUCTION: Prior to the introduction of the polio vaccine, paralytic poliomyelitis was a major cause of morbidity and death. Twenty-five to fifty percent of the survivors are known to develop post-polio syndrome. Symptoms include fatigue, insidious respiratory failure, obstructive sleep apnea, bulbar neuropathy, central ventilatory abnormalities, hemi-diaphragmatic paralysis and progressive functional decline with new onset weakness, among others. We present a case of post-polio syndrome presenting with hypercapnic respiratory failure.<\/p>\n
\nCategory: <\/span>Fatigue<\/p>\n
\nAuthor: <\/span>Tersteeg IM (1), Koopman FS, Stolwijk-Swüste JM, Beelen A, Nollet F; CARPA Study Group
\nAffiliation: <\/span>(1) Department of Rehabilitation, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands. I.M.Tersteeg@amc.uva.nl
\nJournal: <\/span>Archives of Physical Medicine and Rehabilitation
\nCitation: <\/span>Arch Phys Med Rehabil. 2011 Jun;92(6):899-904. doi: 10.1016\/j.apmr.2011.01.005
\nPublication Year and Month: <\/span>2011 06<\/p>\n
\n
\nDESIGN: Prospective cohort study with 5 measurements over 5 years.
\n
\nSETTING: University hospital.
\n
\nPARTICIPANTS: Patients with LOSP (N=168); 89% of the subjects completed the study.
\n
\nINTERVENTIONS: Not applicable.
\n
\nMAIN OUTCOME MEASURES: Fatigue assessed with the Fatigue Severity Scale (FSS). Potential determinants were perceived physical functioning, bodily pain and mental health, extent of paresis, walking capacity, comorbidity, sleeping disorders, coping, and social support. Associations were investigated by multivariable longitudinal analysis using generalized estimating equations.
\n
\nRESULTS: The mean FSS score ± SD at baseline was 5.1±1.4, which did not change significantly during the 5-year follow-up. Reduced physical functioning, increased bodily pain, reduced sleep quality, more psychologic distress, and higher task-oriented coping were independently associated with fatigue. The extent of paresis and walking capacity were strongly associated with physical functioning.<\/p>\n
\nCategory: <\/span>Activity Levels<\/p>\n
\nAuthor: <\/span>Joseph Cotler, Carly Holtzman, Catherine Dudun and Leonard A. Jason
\nAffiliation: <\/span>
\nJournal: <\/span>Diagnostics
\nCitation: <\/span>11 September 2018
\nPublication Year and Month: <\/span>2018 09<\/p>\n
\nCategory: <\/span>Muscular Atrophy<\/p>\n
\nAuthor: <\/span>Hoshino S, Hayashi A, Ohkoshi N, Mizusawa H, Shoji S
\nAffiliation: <\/span>Department of Neurology, University of Tsukuba
\nJournal: <\/span>Rinsho Shinkeigaku (Clinical Neurology)
\nCitation: <\/span>Rinsho Shinkeigaku. 1997 May; 37(5):407-9
\nPublication Year and Month: <\/span>1997 05<\/p>\n
\nCategory: <\/span>Fatigue<\/p>\n
\nAuthor: <\/span>Horemans HL, Nollet F, Beelen A, Lankhorst GJ
\nAffiliation: <\/span>Department of Rehabilitation Medicine, VU University Medical Center, Amsterdam, the Netherlands
\nJournal: <\/span>Archives of Physical Medicine and Rehabilitation
\nCitation: <\/span>Arch Phys Med Rehabil. 2004 Mar;85(3):392-8
\nPublication Year and Month: <\/span>2004 03<\/p>\n
\n
\nDESIGN: Repeated-measures at a 3-week interval.
\n
\nSETTING: University hospital.
\n
\nPARTICIPANTS: Convenience sample of 65 patients with PPS.
\n
\nINTERVENTIONS: Not applicable.
\n
\nMAIN OUTCOME MEASURES: The Fatigue Severity Scale (FSS), the Nottingham Health Profile (NHP) energy category, the Polio Problem List (PPL) fatigue item, and the Dutch Short Fatigue Questionnaire (SFQ).
\n
\nRESULTS: Correlations of scores between questionnaires were all significant (P<.01) and ranged from .43 (between the NHP energy category and the PPL fatigue item) to .68 (between the PPL fatigue item and the SFQ). Scores on the second visit, normalized to a 0 to 100 scale, were: FSS, 78+\/-15; NHP energy category, 47+\/-35; PPL fatigue item, 81+\/-17; and SFQ, 65+\/-22. Except for the difference between the FSS and the PPL fatigue item, the differences in scores between the questionnaires were significant (P<.01). Scale analysis indicated that all questionnaires measured the same unidimensional construct. The reproducibility of the FSS, the PPL fatigue item, and the SFQ was moderate. The smallest detectable change was 1.5 points for the FSS, 2.0 points for the PPL fatigue item, and 1.9 points for the SFQ.<\/p>\n
\nCategory: <\/span>Muscle Strength<\/p>\n
\nAuthor: <\/span>Agre, J., Grimby, G., Rodriguez, A., Einarsson, G., Swiggum, E. & Franke, T.
\nAffiliation: <\/span>Agre- Department of Rehabilitation Medicine, University of Wisconsin-Madison Medical School, USA
\nJournal: <\/span>Scandanavian Journal of Rehabilitation Medicine (Currently known as Journal of Rehabilitation Medicine - JRM)
\nCitation: <\/span>1995;27(3):183-92
\nPublication Year and Month: <\/span>1995 09<\/p>\n
\nCategory: <\/span>Polio Immunisation<\/p>\n
\nAuthor: <\/span>Khan MU (1), Ahmad A (1), Aqeel T (2), Akbar N (2), Salman S (3), Idress J (4)
\nAffiliation: <\/span>(1) Department of Clinical Pharmacy, Faculty of Pharmaceutical Sciences, UCSI University, Kuala Lumpur, Malaysia; (2) Department of Pharmacy Practice, Faculty of Pharmacy, University of Baluchistan, Quetta, Pakistan; (3) Department of Pharmacy, University of Peshawar, Peshawar, Pakistan; (4) Department of Integrated Sciences, Post Graduate Nursing College, Peshawar, Pakistan.
\nJournal: <\/span>Public Library of Science
\nCitation: <\/span>PLoS One. 2015 Nov 11;10(11):e0142485. doi: 10.1371\/journal.pone.0142485. eCollection 2015.
\nPublication Year and Month: <\/span>2015 11<\/p>\n
\n
\nMETHODS: A cross-sectional survey of 490 HCWs was conducted in two major referral public teaching hospitals of Quetta and Peshawar divisions. During February to April, 2015, a random sample of 490 HCWs was invited to participate in this study. Knowledge and attitudes were assessed by using self-administered, anonymous and pretested questionnaire. Descriptive and logistic regression analyses were used to express the results.
\n
\nRESULTS: A total of 468 participants responded to the questionnaire, giving a response rate of 95.5%. Overall, participants demonstrated good knowledge and positive attitudes towards polio vaccination. The mean knowledge score of HCWs about polio was 13.42±2.39 (based on 18 knowledge questions) while the mean attitude score was 28.75±5.5 (based on 9 attitudes statements). Knowledge gaps were identified about the incubation period of poliovirus (19.5%), management issues (31.9%), use of polio vaccine in mild illnesses (34.7%) and the consequences of the polio virus (36.9%). The majority of participants agreed that all children should be vaccinated for polio (95.1%), while reservations were noted about the need of a booster (38.9%), and sterility issues associated with polio vaccines (43.6%). Internet (n = 167, 37%) and Posters (n = 158, 35%) were the main sources used by HCWs to educate themselves about polio.<\/p>\n